I just got a warning on my phone from the weather channel that pollen in my are... — Migraine, Cluster, and Chronic Headache Sharing Community

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  • I did give her the name of the group. Maybe she has not had time to join or may not want to join.

  • Hmmmm, never thought about allergies being a trigger! I'm fighting one this evening and i was working outside most of the day.

  • My neurologist talked to me about "taking care of" my sinuses, since that region is so connected to migraines. Might all be in my head :), but I think it helps when I keep control of my seasonal allergies.

Just to give you guys some good news after a year of my headaches getting... — New Daily Persistent Headache

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  • Woo hoo!

  • Do you think you were suffering rebound headaches?

  • Alex, I don't think it was rebound headache as I 'cold turkeyed' of all painkillers in June 2013.. Wendy: yes I am on preventatives, Gabapentin and Epilim (Sodium Valporate). X G

Hi Has anyone flown since having NDPH I ve had it for a couple of years and... — New Daily Persistent Headache

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  • I had no change either

  • No change for me either! I've flown many times since being diagnosed.

  • Airplanes don't bother me. I even did a 100' SCUBA dive and that didn't bother me either. I will never understand these life sucking headaches.

Good day all — New Daily Persistent Headache

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  • welcome to our group. Sorry you have reason to join us.

  • Thank you Kris Stichter and Eric French...your welcome is appreciated :)

  • Welcome :)

Hello thankyou for letting me join your group. thought I d share my story — New Daily Persistent Headache

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  • I've had 6 rounds of botox (the last one at double dosage), with no signs of relief. Good luck to you!

  • It's worth a try! It may help you. I hope so!

  • I'm about to get my 3rd cycle of botox. I am finding it marginally helpful. My headaches would go a bit in a cycle of a chronic, low, mild-mod headache daily, but periodic flares for a day or more at a time when it would progress to mod-severe. The botox has nearly taken away the severe days. For now. Many meds I've tried have worked marginally well for a period of time, and then basically burned out.

Hi New here and having uh an ouch day It s been almost a year the 17th... — Cluster Headaches Exposed

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  • I'm on very high beta blockers. Completely stopped since jan 15 th

  • Wish I could help. I'm still trying to figure this crap out. But, welcome , unfortunatley, to the ClusterHeads. I'm dying for responses like you.

  • Just realized that it sounds like I haven't had a headache in a year. I meant that I've had one for a year straight.

    Heather, I'm on midodrine and norvasc. Also, cellcept, prednisone, zonegran, zantac, prevacid, xanax...

    I'm hoping to find some home tricks. There's got to be something. Anything. I have 2 toddlers at home and I was useless today. My vision keeps going in and out like when you adjust the lens on a camera.

I was cluster free since summer. Now it s back. I really hate the demon — Cluster Headaches Exposed

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  • I agree with the schedule but exercise triggers for me

  • Out of a cycle? It is a trigger for me during a cycle as well, and I have to stop until I get it under control. But out of a cycle, it can help prevent them from coming back. Truly a double-edged sword. But I do think that the timing of it is important even out of a cycle.

  • Oh yeah I will that that advice then to kept cycles away longer

Hey guys I know it has been a while since I have really posted I m trying to... — New Daily Persistent Headache Support

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  • I suffered from depression when I was in my teens and early 20's, I know I still have a bit of that but now it's associated with the pain. And since NPDH I was diagnosed with anxiety & panic disorders. I know I have social anxiety too, just not officially. I guess I'm just nervous of what diagnosis is next.

  • I understand that. I was a bit surprised when my therapist listed anxiety in my diagnosis. I didn't realize it was that much of a problem.

  • I have a counselor, but I have been to her in over a year. My brother in law goes to her and now I can't see myself going back. I don't know if I should just set up an appt with my primary dr to see what he thinks, seeing that the psychiatrist is just medication.

I feel like I m ready to accept the fact that I may probably be in pain for the... — New Daily Persistent Headache

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  • Yeah I'm working with my psych at the minute on acceptance and also she's helping me pace activities and do little bits of studying a day and building up.

  • Well I hope you find peace in ure acceptance it will certainly help you regain your life and allow you to be in control and not it

  • Thank you I hope so too!

Had to go to the ER last night Not from CH but I was grinding on a weld and... — Cluster Headaches Exposed

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  • Hi all basically our partners try to understand us but you can only really understand if you've danced with the beast and you can get great advice here there's always someone on hand day and night nice lot of people here

  • Your gonna get that a lot (tough it out and the best ones from friends oh I get bad headaches too they don't mean anything buy it they just don't no nor can they imagine it)like Paul Goulston said our spouses try to understand but no one can understand unless you've been there. My wife is so compassionate and she's the type she try's to help people whenever she can and she feels helpless but she doesn't understand when she keeps asking if I'm alright how annoying that is just leave me alone this beast will test your marriage, your faith and your sanity but you can't ever stop fighting. Don't be surprised if your primary care acts like that too. My wife doesn't know just how bad this gets I was in remission most of our time together till just recently but I have faith in her that she will try to educate herself. But anyway stay strong because you will be tested i'll be perfectly honest in the 30 years of fighting this beast I've thought about suicide on much more than one occasion but the most important thing you need to remember is the beast will sleep when he does take full advantage smile laugh enjoy this to shall pass it might not feel like it at the time of an attack but it will

  • Likes what Roy Roy Mace said about partners keep asking are you alrite mine does the very same not there thought they just wanna help lol but I've been abrupt few times by accident and just shouted go away I'm not a nice person when the beast is attacking me

I hate fighting a fight I know I can t win but I keep fighting We all need to... — Cluster Headaches Exposed

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  • There's alot of us fighting this all in our own ways but sum have been fighting alot longer than others you read of people 30 years into this that's a shit thought I'm only just over 8 years in this club. I'm thinking about telling the beast I no longer want to be in his club hahaha

  • It is rather like what they say about the Beatles and Beatlemania: only four men knew what it was really like to be a Beatle. In our case, only a fellow CH sufferer knows what it is like to have them. But it is really an "exclusive" club that none of us want to be in!

  • I was that last one in line, hiding and ducking!!!!!

If one more person says I have migraine I think I might scream I would happily... — New Daily Persistent Headache

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  • I despise it when doctors or anyone calls this thing a migraine or migraines. No, it is freaking constant head and face ..... constant! I really want to punch them when they say it. I know I immediately get an attitude.

  • Omg so know wot u mean, the amount of times I have to bloody explain myself

  • i also have constant head pain Claire Stratton plus migraine 3 days per wk

Well I am back Had daily pain for 2 5 years then it was gone Now they are... — New Daily Persistent Headache

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  • I had a 3 month respite once, but it came screaming back, this time with tinnitus.

  • Wow I've never actually spoken to anyone that it left for a bit. Sorry to hear it's back though!

  • They really do go away . . . if only for a short time??? Let us all HOPE for this for us all . . .if only for a short time!!!

Hi my name is Ray I started getting constant headaches 9 years ago They... — New Daily Persistent Headache

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  • Raymond, I am SO SORRY!!! I hope this page brings a little comfort knowing there are others out there who know what you are going through. Prayers....

  • Hi Raymond. I've had a constant burning headache for five years now...Occipital Neuralgia. I also have fibromyalgia and am bipolar. I'm 32 now and it is so terribly difficult. The pain changed everything. I was only married two years before it began and we never really got a chance to settle in to our life together. I know what it is to feel like a burden on someone and to wish that I wasn't here. To feel that I don't live...that I just exist. I'm sorry you are feeling so down and having so much trouble. It's possible she might have a different view of things though. My husband and my family remind me that my presence in their lives is a blessing to them. I often don't understand how they can say that...it feels foreign to me. But, they say I'm strong and that they love me, and they are thankful that I've made the decision to stay here with them. It takes a lot of thinking and acceptance to come to terms with our innate value as human beings...as souls with bodies, not bodies with souls. That what we are able to do is not what makes us valuable. I still haven't reached that point yet, but I'm trying. You are valuable Raymond, no matter how damaged you feel.

  • Hi Raymond ! I too am 51 going on 52 later this year I got married 11 years ago to a wonderful man and we did everything together from bowling to riding on his motorcycle doing bike runs and so forth I also was active in my photography but for the last four years I've been depressed because of my daily migraines. I've had migraines all my life but never like this. My husband works full-time job and has to come home and do housework and laundry and grocery shopping and cooking because I just can't handle it. I often wish that I had cancer so people can see the hell I live in but they can't see it. Hang in there trust me I know it's exit toll on your marriage

I m new my cuz invited me I m jen I have been having pain on just my right... — Cluster Headaches Exposed

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  • Thank you all I'm going to be going as soon as I get my little one to sleep. My husband said he was calling doc in morning but it is to bad I have had these headaces on and off for the last couple years but worse these last couple months coming on and off but not one these bad. I'll keep all updated as I can

  • April is too long to wait! If you have cluster headache symptoms: regular strong attacks at about the same time of day 1-5 times a day or more, lasting for 15 min to 3 hours, with pain concentrated on one side of your head in and around the eye, perhaps some tearing, perhaps some stuffing or runny nose, with your eye wanting to close tightly shut and the inability to remain still or lie down, then I wouldn't wait, I would try to get an appointment with any neurologist who knows about cluster headaches. During a severe attack season, I would give up just about anything to get relief, so just the thought of waiting and suffering through a month of attacks is extremely unsettling. But like the others said, try and rule out all the other possibilities. By doing your research about the various types of headaches, you might be able to speed up the process of an inexperienced doctor doing guesswork. It's a common complaint among us that CH often goes undiagnosed or misdiagnosed for years before a doctor finally suggests that you might have it.

  • If you have CH, the ER will not be able to tell you much. You'll get a Cat-scan and they will send you home with pain meds which will not help with the pain (unless there strong enough to make you pass out and that only works so many times). Hope the best for you. Take care, Jen.