Hi after some advice please my 9 year old son has had migraines for the past... — UK Migraine Support And Advice Forum

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  • Thanks Janet I was concerned that he wanted to sleep all the time good to know that's normal x

  • Xxxxxxx Yzzzzzz ifyour still concerned take him to see your doctor ,or try and get the doctor to come out to see him ,but please make sure he drink's even if its just regular sips of water so he doesn't dehydrate , take care x

  • So sorry you have to see your little one suffer. Would something with ginger or peppermint be a comfort. Lavender is a comfort in the background, though I know very well the pain only goes away when it is ready to. We have photosensitive migraines and issues with the sun in our family line. For me, LED lights have played me up no end. Try putting something warm on the back of the neck. If noise creates havoc, try pinching the area between the thumb and forefinger....I have not tried it myself but a friend I know told me it helped him. Maybe the smell of warm bran might help?.....crazy I know but my Mum ran a tumble dryer with plain bran in it, and it helped!....no I don't get it either. Closer to the truth I found the background hum of the tumble dryer soothing, so this might me more soothing than anything? I also wear migraine darkened red glasses these days, they really help. But saying that, different things work better for different people. Really hope this eases off for your family for the Easter Break. Take Care x

Well just great. Was on day 3 of a migraine last night — My Migraine Support Forum

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  • Advil mix with torodol? Good to know. Could be... try nixing. the benedryl next time & see if you itch

  • I am thinking something mixed non good with the maxalt. Uggg

  • My kidney doctor when I was having kindly stones last month said I could take Ibuprofen with my Toradol

Hello. Any advice please. Has any one got any experience of the York test — UK Migraine Support And Advice Forum

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  • Thanks. I have already cut out dairy

  • I've heard of the York test but have never done it. I got tested for intolerances years ago in NZ with a computer hooked up to a copper rod which I had to hold. As the woman who tested me scrolled over the various foods and substances on the screen my body reacted to the ones I had an issue with. I was incredibly sceptical and tried my best to catch her out but it was SO accurate. I cut out the foods she picked up on and went from 5 migraines a week to 2 in 5 months!! Unfortunately I have no idea what it was called but it obviously picked up on intolerances as well as allergies as I don't have any actual allergies. My point is that if the York test only deals with allergies maybe there is something out there that would be more suitable? It's something I plan to look into again too.

  • I've cut out all diary except chocolate , Did av some ice cream as fancied some so will try cut it bk out , I don't any other x

Has anyone had success longer lasting pain relief with prednisone — Cervicogenic Headache Support Forum

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  • I have been on it for colds and it didn't help my migraine headaches that I have daily. I get cervical steroid epidurals every 6 - 8 weeks and with that I may get 3 - 5 days of headache free afternoons, then I go right back to it. My doctors are working to find an answer though. We try so many things. I wish for headache free days for everyone!!!

  • You should not be on steroids for colds! It only make the infection last much longer as steroids lowers your immune system:)

  • Thank you. And you are right. I am still dealing with one.

Really not feeling well Day 4 of a migraine Two weeks of non stop suffering... — UK Migraine Support And Advice Forum

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  • Try putting the radio on low volume in the next room, press something warm on the back of your neck and think of a spice you get on well with, like ginger or peppermint.....if you feel well enough try a ginger or peppermint tea.......but it you find strong smells make you ill, try pinching the area between your thumb and forefinger on your hand....hope this helps...take care x

  • Same as me but last night doc give me zolmitripan.nasal spray 5mg with mine actually looks until these lke I was having a stroke x

  • hope you find something

Has anybody tried midron — My Migraine Support Forum

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  • Didn't work for me. Had it years ago

  • Yes, I tried it about 20 years ago and am currently taking it.

  • I took it years ago and it was hit or miss on whether it worked. Always made me a bit manic afterwards. I was told it had been taken off the market so I switched to Maxalt and now on Imitrex.

Hi I ve been 4 months free with out mirgraines then last night they started... — UK Migraine Support And Advice Forum

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  • Hope it is easing off soon. If it any comfort I get numb tingling and drop things. Sometimes my partner has looked at me quizzically so I then realise that my words are muddled or my speech is not clear. He told me that it is like I am speaking through clenched teeth, anyone relayed this to you too? I find that I am very likely to be triggered by strong lights for what's is worth, though I am aware that different triggers are out there for many migraine sufferers.

  • I had the same symptoms once and was told I should go to the Doctor's. They were worried in case it was a stroke (normal with a migraine but they were covering their selves). Felt like a fraud as I knew what it was. When I had it after I was back from doctors I kept myself wrapped up and made sure I drank lots. I was lucky as I had someone who could take me to appt.

  • Thanks , it's took me few days to feel 100% me again , really hope I don't have any more , last year they was really bad then apperared to space out and became less, still not sure what keeps triggering them I don't eat any diary except chocolate lol but I feel that helps as after I've had a mirgraine , my sugar levels go so low n I'm shakey and get really annoyed , doctors are usless just thob me off all time, not 100% sure if it's my implant I'm on as that's due out in Oct been on it 6 years never had a brake and never had a problem till last year with mirgrainesx

It appears that after so long. my migraines are becoming more frequent — UK Migraine Support And Advice Forum

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  • I know what you mean. You can put up with them for do long then need to do something. I have an appt later and need to mention mine as they are getting frequent.

  • Mine are the same , I went to go to work last week and lost site in left eye and face all numb , I slept the start of last week then ended up going to docs in agony , and ended up with blood test and high blood pressure appointment for scan , I am still off now as shooting pains all down my left handside and in my head , hope you get yours sorted xx

I was just prescribed propranolol Has anyone used this and has it worked for... — My Migraine Support Forum

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  • I gained 30 lbs in a month!

  • If I could go back in time I would never ever have started it it doesn't help and it does something to the heart and makes you dependent on it pls don't start it.

  • I had a migraine for 2 straight weeks on it and couldn't go another day so I never even made it a month so not sure if it would have helped. A friend tried it and said it's helped but now she's tired all the time.

So I had never had a migraine before 4 yrs ago It started out with maybe 1 a... — My Migraine Support Forum

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  • Don't give up. Find a Dr that will keep trying. I've had mines for 25 years. Recently daily. I now get Botox inj which has help me tremendously. For rescue I take Imitrex. I also take ibuprofen, muscle relaxers and magnesium. Keep trying.

  • Thank you so much for the suggestions. I will definitely be looking into these.

  • My heart will race an shake like a a crack head.now I shake all the time all I'm on is lithium an tegrtol benadryl so much ibuprofen iv spit up blood a little. In the last few weeks iv started passing out I live alone an it scared me so bad. Hugs.

Magnesium users. Do it really help. How many mg you take and how often — My Migraine Support Forum

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  • I hate shopping online. What brands magnesium or magnesium citrate are the best and what stores can you buy them in?

  • I use it too. If you go to their website and enter your email you can get $10 off on amazon for migraine stop. They also offer 365 day money back. So if you dont like it, return it, and what do you have to lose?

  • I've been using it 3-4 months ..

    I get a discount every time . Last time ordered three bottles & got 20% off ..

Can you have cluster headaches but not all the symptoms This all started 2... — Cluster Headaches Exposed

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  • Hi Elena! Sorry to hear that you're having a rough go of it lately.

    Symptoms of CH can vary a bit from person to person - but the only way you can get a definitive diagnosis is from a neurologist or headache specialist. It sounds like what you're experiencing COULD be CH...

    The following link is a quiz that may help narrow down what's ailing you...

  • It sounds similar. My cycle and associated pain is, extreme pain into my left eye, behind my left ear and into the top of my head. My left eye swells and waters badly. My nose is stuffy. The pain starts at about 2am as an 8 and then lasts until about 11pm when I eventually knock myself out with sleeping tablets. With medication and oxygen I can get the pain down to a 5 during the day. But my memory, self confidence, ability to think, focus and function are severally impacted.

I m starting to feel discouraged My neurologist used to prescribe midrin for... — My Migraine Support Forum

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  • BCBSTX stopped covering it as well -- my daughter was using it. They said it was because it contained more than the FDA approved amount of acetaminophen. I have used a GoodRX coupon and paid $23 or so out of pocket for it (20 pills).

  • That makes sense. I have Anthem Blue Cross. I looked it up on GoodRX and it isn't much more than I was paying with the insurance. I see my doctor on Wednesday and will talk to her about it then.

  • Thank you everyone for all the great advice. It has been very helpful.

Has anyone ever taken Sumatriptian after taking excederine migraine Im getting... — My Migraine Support Forum

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  • Wow that was quite the intense attack. I can barely handle 1 a day but 2 ?!?! I can't do this I'm physically exhausted, these vicious things are taking over my body

  • I always rebound from Excedrin, its probably the same attack.

  • I don't know what to do, imitrex makes me drowsy and can't work when I take that stuff

Welcome to our newest newest member Rosario Goze She joins us from the... — Australia New Zealand Cluster Headache Support

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  • Hi, all!! I'm due to having my 3rd baby any day, excited to say I haven't gotten hit through my entire pregnancy. Going to Oklahoma after I have my baby to get the Jesus Shot. I'm episodic and it's been great being pf for 9 months. I've always wanted to visit Australia and New Zealand!! At our Minnesota State Fair there are Australian potatoes that I make a bee line to as soon as get there. Best fair food ever, anyone have a recipe?! I've removed a lot of chemicals from my everyday use for the health of my brain and body, I've started eating organic foods, and I've been very conscious about what I put in my body and allow in my home and other environments. We deal with enough chemicals in our medications already, right? Thanks for the add!! Peace and love to all.

  • Welcome!

  • Welcome

I have a question n want people to try n be as honest as they can or feel... — Cluster Headache News

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  • Exactly !!! :) :) :) Very well put, exactly on point, and I can relate to absolutely all of it !!! :)

  • Kidney stones of the skull !!! :)

  • I call it the demon I'm lucky I have the support of my whole family when I'm up at 3 in the morning crying my hubby is there with me crying with me sometimes I'm in a bout at the mo and I'm getting hit every hour I agree with you it's not a bloody headache I suffer chronic migraines and it's nothing compared to ch I can understand why people end it I've thought about it a few times especially when I get nights like this I don't even have my oxygen yet takes the piss please Ajay try to relax when you cab when CH lets you sorry your having such a bad time sending pf wishes Hun

Feel so bad for my 17yr old daughter tonight She has had to take a Zomig nasal... — UK Migraine Support And Advice Forum

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  • So far we've not identified any food triggers. Thankfully she's not normally this bad unless she has her period or is going through a stressful time - her GCSEs were a horrendous experience. Our 15 yr old has had a much worse school year, her attendance was down to 85.4% at her last report. She has missed at least one day a week, sometimes more down to the migraines since the beginning of Sept. Thankfully we seem to have turned a corner and she has managed 4 weeks now without a day off. :-)

  • Stress will set me off. Youngsters today have so much pressure on them from such an early age.

  • Is know. I feel bad for them. I also feel bad that I have passed migraines on to all my children. I have 4. They all get migraines. :-(

I hate the way I feel once the migraine lets up almost as much as I hate the... — My Migraine Support Forum

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  • Me too

  • I call it a hangover too. It sucks. My anxiety gets worse, I worry about little things that are not an issue. Plus I want to sleep for hours.

  • Postdrome is almost as bad as the actual migraine. It makes me so jumpy!

Does the maxalt help really bad migraines tried everything except this willing... — My Migraine Support Forum

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  • I take midrin. It works really well for tension headaches. I also use it after my triptans have started to the work.

  • It's the only thing that's helped me and I haven't felt really weird after taking it. I actually break my pills in half and take half when I feel it coming on and it sometimes works. A whole pill will make me feel a little shaky.

  • I also try and drink some caffeine too and that can sometimes help. But I think the key is taking it right when it comes on. I should keep a pill box on a chain around my neck for these.

Hello everyone a lady posted the other day about her Mom being put in a drug... — My Migraine Support Forum

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Anyone get a really tight chest after taking sumatriptan — My Migraine Support Forum

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  • Yes I get pain in my chest, neck feels tight, shoulder and arm ached, veins jn my neck feel constricted..oh I hate these migraines!!

  • Same here. Dishes are not getting done after taking it. Lol

  • Yes and my throats started closing I couldn't get a good breath and breathing got very shallow and very rapid. I was having an anaphylactic reaction and if I hadn't had an epi pen I would have went into respiratory arrest. Please be careful. Keep Benadryl handy and epi pen if you have one.

A new symptom for me. Do anyone else have tingling in the hands and feet — My Migraine Support Forum

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  • Yes.

  • i av tingling in my hands, forearms, feet and bottom of my legs all the time. one dr said it was my stress and anxiety, another doc said it was a symptom of my chronic migraines and chronic daily headaches and another dr said it was part of my fibromyalgia. im guessing iv constantly got the tingling due to all 3 conditions being up and down all the time xx

  • Yes. But it's also a side affect of one of the meds I'm taking..Topamax. It's in my feet..my fingers..specifically my right hand. :/

Hi all. I need your advice — New Daily Persistent Headache

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  • I'm sorry. We have to find a cure. My 13 year old daughter has had a constant migraine for 2 1/2 years. It has taken over her life.

  • Keep doing your job as best as you can while looking for something less stressful to you. You are sick. You need to adjust your life. Otherwise you will end up with wore headaches. I know. I've been there. Take care of yourself.

  • Please do so and fight for yourself! I'm very passionate about this, especially now. Good luck!

Does anyone else in the group take Gabapentin Fluoxetine and use a Butec... — UK Migraine Support And Advice Forum

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  • hello i am on Gabapentin At the very moment, i take 300mg 3 times a day for muscular pain and for migraine. it does miracles to my back and neck but nothing to my head at all. I foun d out some time ago that i have a shorter leg than the other so doctor thought the misalligment of my spine caused the migraines. Ever since i did physiotherapy and took gabapentin to treat the problem. I had huuge improvement on back/neck but my migraines didnt get any better so they realised it wasnt because of that, but neuroligst is still happy he spooted this problem and got it fixed :) ( since he is the very first doctor to spotted the problem, nobody else noticed i was walking funny :()

I have a quick question Has anyone else experienced sores in their mouth while... — New Daily Persistent Headache Support

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  • Sounds like you may have yeast causing canker sores-I have had that but only one or two at a time-very painful and uncomfortable

  • No

  • I had sores in my mouth once last year. The dentist diagnostic was stomatitis. I was in a period of acute stress and fatigue.

    It went away within about 3 weeks.

    I haven't found any correlation with the severity of my headache though.

STORYTIME. Feel free to laugh because I feel stupid — Official Migraine Support Forum

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  • No .. I've experienced migraines for about 3 or 4 years now .. they suck

  • Well I mean , I get migraines occasionally .. but I have just recently started back taking my Adderall because we've been on spring break .. and I notice migraines every time I finally start taking my Adderall again ..

  • :( Prayers

Last night 9 hours without a let up Im done 20 minutes is torture I miss... — Cluster Headaches Exposed

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  • 9 hours...... ? I might not be alive . 2 hours is the longest I've had and that's way to long.

  • There are no words to explain. I wasn't alone thankfully or it would have been my last. Now I am terrified.

  • You should be. I would.i can't even imagine that long. Hang in there bro.

I have tried all kinds of things to try and stop my migraines Now my... — My Migraine Support Forum

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  • My protocol:

    Imitrex 100 mg

    Fioricet

    Ice pack around my head

    Rub Tiger Balm on temples

    Eye mask

    In bed keeping feet warm

  • Imitrex nasal form

  • I finally found a combo that seems to be keeping them at a minimum. I'm on my second round of Botox and I can tell that is working because when it wears off I start to get them more frequently. If I take maxalt right when it starts coming on most times it will stop it. If I get past that point I take a maxalt and excedrin and ice on my head and pray for the best. I also use the fasciablaster on my traps and neck twice a week to keep my muscles loose because I noticed this has helped.

Has anyone tried a salt rock lamp. For migraines or other health reasons — My Migraine Support Forum

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  • I have one and I find the light soothing but I saw a report that they can be a fire hazard.

  • We have one , got it for allergies, couldn't tell it worked ( have been getting migraines from some allergens)

    I have a friend that swears by it for sinus issues ...

    it won't hurt you ...

  • I have a few. They don't do anything for my migraines, but I love the glow.

Am I the only one who takes a Hot bath when it just gets too much All my life... — My Migraine Support Forum

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  • HOT shower with Vic's on my neck and points of pain right after with a cup of black coffee and a huge glass of water

  • Yeees sounds awesome! !

  • Steaming hot jacuzzi. I love the relaxation. Of course I only get that in a hotel because my bathrooms are too small! A girl can dream.

vomiting helps me feel relief from my migraine i even force my self to it just... — My Migraine Support Forum

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  • I get nausea and can't throw up, even if I tried to. So now I just say okay well, since I can't puke. I just rest.

  • Yes

  • I never forced myself to vomit ... the pain was so intense that I would vomit because of the intense pain... some relief after...

Hello all so I know everyone has different things that could be causing their... — Head Pressure or Migraine and sinus related along with dizziness

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  • Xxxxxxx Yzzzzzz described my exact brain fog! I fell and hit my head about 6 weeks ago and have been suffering from this since along with weird pressure headaches daily. I try to explain to my husband and primary care Dr and they look at me like I'm crazy. Christopher-I have a good chiropractor but not sure what NUCCA is and will look into that. I'm scheduled to see a neurologist in May as well. Thanks so much for your post!

  • I find this when try explain to doctors or nurse or family they look at me like I'm crazy. It's frustrating but very scarey too x

  • I had a similar experience. Doctors thought I was just stressed but I knew that couldn't be the only issue. Definitely look specifically into nucca. I've tried other chiropractors in the past with no real long lasting results.

Hi my name is Susan I suffer from hAving migraines every single day I have... — My Migraine Support Forum

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  • Thank you

  • Are you on a preventative med? Topamax, pamalor combo are my preventative. Along with magnesium, vit b2, abortives firocet, midrin phenergan, mountain dew, panaway essential oil to the neck and head, along with ice

  • My wife has fought migraines all of her life. She got an ear cartilage piecing and it has help 90%. I seen her go through all of the drugs you have and more. This is the only thing that has ever helped her.

Anyone who themselves suffer from migraines Some of us knows what triggers... — My Migraine Support Forum

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  • Sorry to hear you're going through that. I understand you.. My husband seems to think migraines are psychological & I should be put in rehab

  • I can relate they are definitely one of my triggers too.

  • Lots of selfish people out there who refuse to believe smells like cigarettes, perfumes, scented hand lotions, or air fresheners hurt other people and cause migraines.