Hi Emma Pimm, you know what I think. You answered the question when you looked at the headache type chart. Yours was a combination of sinus and neck headaches like most on here. I'm still struggling to understand your diagnosis of 'migraines'?
Thanks very much for your comments Benjamin. That's really helpful for me. Slight change of plan from today, I've been told that they now want to start me straight on 80mg of Propanol and skip the Topiramate. I've just checked on a couple of sites and people mostly mention taking 2 x 40mg twice a day, rather than the 80mg I've been told to take in one pill but I'll give it a go. I have a lot of blurred vision, a pulsing in my head and a sort of clenching in my head which is the most disturbing, hopefully it'll help. For the last couple of months I've been taking amitriptyline and have to reduce that now and slowly stop it completely and just rely on the Propanol. Fingers crossed.
I agree with you but the neurologist doesn't think it's that. So, I've got no choice really but to give this new medication my best effort. I've got a follow up appt with the neuro in August, so if it doesn't work by then then I guess they may look again.
Thank you, me too! I'm improving each day. Today was the first day I woke up feeling almost normal (aside from a headache, but what else is new?). Really, I'm experiencing the best possible outcome to the situation.
I agree, they just kind of take the edge off. They make it at least tolerable which I'm thankful for. Thankfully, I haven't needed to take them everyday and have been able to just take a few times. Thank you for your well wishes! I'm well on my way to a full recovery!
You're welcome! Glad to hear you are recovering.
Bless you hard when the the rubbish days happen on birthdays. I had to go to one of my life long friends funerals on my birthday. I still visit his grave on my birthday. It's part of getting older I'm afraid reality is more visible. Gone are the days when nothing matters Because it's your birthday. Do what I did. The next year I went to Paris. Thought screw this, then in Paris it didn't even matter that it was my birthday because we was in Paris drunk. Lol. But for now. Write your self a iou for a birthday and a night out. Have a hot bath and get some rest.
I'm so sorry you are going thru all of that!!!
I don't know if this is something of interest but I have been trying tinted indoor glasses and also an outdoor pair of glasses from THERASPECS. They have cut down on the number of migraines I get due to light issues!
Natures own in coles i get
I find Great relief magnesium to but I some people say not to take over 500
Yeah she was playing basketball. It was strange. Were on 7 months now
How are her headaches now ? My daughter is on neurontine and naproxen and its not doing anything !! She is on a 6/10 headache right now
She started topamax in October we increased a lot and are starting to wean off gonna try amptryline at a higher dose hoping it will help. She's at a 8 on most days with lots of ear pain too. Nothing is yet to help.
No. Did a floricet and now I'm going with excedrin migraine
I am so sorry!! I hope this cocktail gives you some relief. Hugs!
I have 1 Imitrex left and I do have Excedrin Migraine but it doesn't help anymore and I can't refill it yet, called the pharmacy and asked and they said my medicare insurance won't cover it until Mon the 27th and my husband's insurance says I have to wait 30 days so either way I'm screwed, I asked my pharmacist if the shot's was better but he said not really
Stay strong Mark Wilson, read up & ask questions.
We're here to help.
I echo what Dan said above, if I had to go away for a while and was only allowed to take two groups of meds with me The D3 and LSA would be them without question. Not quick fixes but proving to be quite dependable.
Try a red bull during a cluster. At least that'll give you some time off. Be careful when using oxygen after. It may work way quicker.
Xxxxxxx Yzzzzzz.is correct. I generally end up in the ER at least once a month for my migraines and that's the same protocol they they do
They start with tordol benadryl Phenergan cocktail which dont work and then move on to morphine/diludad/demoral. My neurologist has offered to direct admit me and skip ER wait when i have had a 3-4 day migraine but i declined as my small kids/job wouldn't allow. I had to power thru
All of these sound about right and as far as admitting, not very likely.
They didn't say how many but watch that 2 in 24 hrs. I feel in with other meds when I can.
That's coming from my neurologist at Mayo Clinic.
I believe my Sumatriptan injections say no more than 2 in a 24 hour period and no more than 5 in a 7 day period but definitely check with your doctor. I can add Cambia Powder at those same doses with the injections.
Well she didn't put me on anything else. Just increased baclofen and after I brought it up I'm going to discontinue the propranolol with the option to reinstate in case I trend downwards before next appt.
On a good note I got my botox today and it was the most gentle I've had out of three places. And as usual my migraine has started up from the irritation of the needles.
Thankfully we did go over what to do in case of.. different scenarios.
Thanks for your help.
Alyssa I tried them too. Both made me extremely dizzy
Me too! After my bad car accident I was diagnosed with a balance disorder and I was falling enough on my own those meds made the dizziness much worse!
I'm sorry . But most people don't believe in migraine
Im blessed to have such a caring husband and family and friends. I don't know if they truly understand what i go through, but they are compassionate .
Yeah, fainting is one of those things I just love to pretend to do for attention, while my head is hurting. Because it's so fun! Yaaaaaaaay me, now in going to "pretend" to throw up, on you. It's only pretend vomit, I'm faking, oh but you have vomit on you? It must be real, hmmmmmm, weird.
I agree when ur feeling better if not before branch out and find a better form of treatment from a neurologist! I live in erie pa area three different hospitals and a medical college and no one here even specialized in my issues. I travel 1.5 hours every three months to Pittsburgh for my two neurologists. It's worth it for sure! I can no longer drive that far so my husband usually takes a sick day but sometimes as a teacher he can't so my moth in law takes me! When I have a bad migraine cycle he calls in meds to my local pharmacy! His staff is great and they love him as well! My entire life I have had migraines and I have never received this quality of care! He is about my age and I told him he can't ever retire! He must remain my dr. Until I die! He laughed but I was dead serious! Lol my advice be 100% honest and open with your neurologist from day one. Tell him or her about your patterns and bad cycles, what u have done in the past, and short of the cure we are all looking for, how u would like to improve your quality of life! A good dr. Will respect your honesty and treat u as effectively as they can. If not move on until u find that provider! U may have to rely on a family member or close friend if ur single to drive u but the reward will be worth it! Since my dr. Has been treating me he has seen me on both good and bad days and everywhere in between and he always takes the time with u to review ur past meds treatment plans and then tweeks a new plan! I am sure Pittsburgh isn't the only city with a migraine or headache center! When u feel better goggle the hospitals in cities near u and good luck! Hope it lets up soon for u. Mine finally did yesterday! My thigh is sore and looks like a pin cushion but I feel better. Now if someone could just develop a pill so the dizziness would go away or at least lessen so I could leave the house that would be great! Walking has been hard this week and I have to MC tonight for the PTA and the science fair for someone who can't be there. She wrote down my "script" and I haven't been able to go to the school to pick it up! Lol my hubby is dropping me off and then picking me up and I told them migraine let up enough I can talk, but dizziness hasn't so make sure the mic can reach the chair I will be sitting in beside the podium! Lol
Oh my goodness!! They did nothing?? Horrible. Can they at least get you a referral to a neurologist? My neuro has been an absolute blessing. I see him 3-4 times a year to update my meds and to talk about anything new that crops up. Our goal is to keep me out of the ER. So I have have an oral and suppository form of my anti-nausea med, Percocet, and Imitrex to keep me from needing to go to the ER. The biggest issue for me is that once I start puking, I can't keep anything in my system and I become dehydrated. I would contact your PC and see about seeing a neurologist as soon as possible.
Try injectable immitrex and dissolving anti-nausea meds they stay in your system even if u vomit after taking. It's my current regime as well as another injectable cycle breakers med if those don't work that it's a call to my neurologist! He calls in other meds as needed! I haven't been to am ER since 1995 when I was asked it I was hearing voices! Even medical staff are ignorant in the treatment of migraine sufferers! We are in level 10 pain and don't want to be in a loud, bright, smelly ER that's how bad the pain has become. We aren't pill seekers we need relief plain and simple! Unless we are seen every week we aren't pill seekers and addicts we are in pain and need relief. The only exception is when we are stuck in a cycle for a month or more but by then dr. Worth anything would call in a neurologist to consult for treatment that actually has a chance of working for someone in a terrible migraine!
I tried the samples first before I got the actual script. Did the same with onzetra.
I have to get prescription tomorrow. I'm picking up samples of Migranal. Insurance is wanting to know why he is prescribing something so expensive. Well its because NOTHING else is working. Duh!
Exactly- Insurance makes me so mad. If the dr. Prescribed it and you can see that they r billing you for my services at their office why r u fighting me for my medication.
That is a good point. I have looked into medical cannabis before. It is an option I would consider, but my headache clinic does not allow it. So I will try it when I give up on them. I am pretty close to giving up on them now. We shall see...
Does your college have a Disability office? This article may help... My son is in high school and has a 504 plan so I haven't had to face college yet..but its coming... https://www.understood.org/en/school-learning/choo sing-starting-school/leaving-high-school/checklist -types-of-college-accommodations-and-services
Yes, I am registered with the disability office. Unfortunately, this professor is insisting that I meet with him and my master's program director. I am obviously not well enough to attend a meeting. That is why I am absent from class. I should not have to meet with them to use accommodations that have already been approved anyway. However, there is no one to enforce the accommodations. You can get them and if someone does not follow them, you file a grievance. I am not up to filing a formal grievance at this time...so I am on my own. When accommodations work, it is wonderful. However, the times they don't work kinda overshadows the times they do.
I am here as well! Seizures and migraines have been my life as well! And I agree with Adah Packard have someone stay with u until testing done and meds get ur situation under control! Good luck!
Thank you! I wake up hoping this will be the day I am migraine free!!Not yet and the coughing is making my head so much worse.Every time I cough bad,I scream.It has to get better,right?
It will it always does! When I was at my whits end I remember people telling me to meditate! Pre car accident when I took workout classes I never did yoga or Pilates until one day after a sports injury and my rehab was done I felt stiff and thought I can't do the Bosu boot camp class yet but the only other option was a Pilates class? I had a friend tell me it's great for stretching and increasing flexibility so I grabbed a yoga mat my sister bought me hoping I would try yoga for my migraines! Lol she has them really bad now and realizes how stupid that suggestion was when nothing could touch my head and I couldn't bend over without terrible pain and pressure but yeah I'll get right on that yoga! We laugh about it now! But anyway I went to the class and unlike yoga breathing isn't as much of a focus but is part of it but it was relaxing and u have to be in shape and without a migraine to do Pilates and yoga correctly! The older women in there were twice my age and kicking my ass in that class! It changed my opinion that day. I still never thought that I would find inner peace and ever meditate! But after my TBI and the fact that my already damaged from birth neurological system just sustained a trauma to make all existing conditions worse and add a few more that have no know successful treatment and I had neurologists referring me to more specialized neurologists I learned when all meds have failed and u can't take the next treatment for 24 hours I meditate! but in my own way that works for me! I didn't take a class, read a book, or ask the Dali lama! I do what works for me! Until I can try another cocktail of meds to break the cycle! Even though this was a long answer YES YES YES it will get better with people like us we just never know when! It takes time but with the correct diagnoses and meds and finding what u can do to help yourself when the meds and Drs can't u will have in ER piece! And as our hormones change we adapt as well! I am 42 and have been working on my inner peace for 42 years! Hang in there!
A dermatologist told me that when I tried it for cosmetic reasons a few years ago. More is injected in your face than scalp there so that is probably why.
My neuro told me not to lie on my side and not to put anything on my face/scalp ect.
I know I wasn't supposed to rub face/head for at least 24 hours. A hard one when the side effects often are extreme itching
Neurologist told me to take it once I have it. It's not a preventative medicine
Yes, I know. I was trying to say it works better when you are first starting to get a migraine. It doesn't help for me when mine are full blown with vomiting. Hope that helps. Look on the company website. They sometimes have coupons or free copymt
I'm sure it will pay for it but it's just going to take a few days. Thanks for the info though
Some people HAVE to work regardless. I have some sort of pain daily. On the 10 days or days i cant see i stay at home. Most other days im at work. In sunglasses. Like today
I have some pain all the time....we do what we have to. But today woke up with one due to a major snowstorm so will probably stay home
I have had some sort of head pain since Halloween 2016, I had debillitating throwing up, migraines for 20 days striaight, now take propranolol and amitriptilyne, pain less severe, rearely need nausea meds, but still have pain and visual disturbances
I've tolerated it well esp compared to Sumitriptan. In this paper from a neurology journal Rizatriptan has the edge of Sumitriptan, though both are good. https://www.ncbi.nlm.nih.gov/pubmed/8912486
This paper gives an explanation and comparison of the different Triptans http://www.medfusion.net/templates/groups/196/492/ Comparative%20Aspects%20of%20Triptans%20in%20Treat ing%20Migraine.doc. Rizatriptan worked well with me but wore off after a few hours and the migraine came back, so we tried Frova, which suits me a lot more.
I had sumatriptans just made my head numb. Didn't work for me xxx
No, my daughter has not had pain free days (for 3 years now) BUT she is MUCH more functional. She is taking classes (had not attended school in over a year), has a bit of a social life and is able to enjoy more activity. The other things she has done that I think have contributed to the improvement are: DHE, Biofeedback, magnesium, CoQ10, Migrelief, Turmeric and Botox. Good luck!
My husbands preventative is phenobarbital. The others didn't touch it. It helps keep him from staying at a 9/10 each day. He hovers around 6 or 7/10 most days. The others didn't get him down to 7.
The only pain meds that helps any is Fioricet, due to this the nuero thought the pheno might work better for him & it has a little. He takes it in combination with doxepin.
My MIL does ok with Depakote, Nortripyline & gabapentin. None of which helped my husband.
Might want to try a new dr. If we need injections to better treat our migraines then that's what we need! I hate needles my husband injects me but I need to learn to do it to myself!
That and they tend to wait until they are really sick instead of seeking preventive care! Also we educate them that by seeing the same dr. They begin to know u and ur children and can provide better quality care as a result.
I think you get two but I'm not sure the time frame.