I use creamer, but the Dr said black is better. If I don't have creamer I use sugar
I hate those brain zaps ugh
The doctor at the ER gave me 2 weeks worth too see how I do since my headaches are chronic. If that don't work my neurologist may put me on relpax like he was supposed too. Toroidal don't work for me.
I have my daith pierced and had no relief. That said, I had just gotten an ocipital nerve block and trigger point injections that caused a horrible flair up right before I got the piercing. That was in Sep. I am finally having a better month after switching from propanalol to verapamil and going on the keto diet. Had 3 maybe 4 migraines in the first few weeks and have been much better since. I think I may have a migraine coming on now though so we'll see.
Dont know how being drunk feels....lol...but i hate me some migraines
Haha I only have a few times but that's easier than a migraine
If I wake up with one, I am down for a couple of days and horribly sick. Those are the migraines we can't catch early and take rescue meds for. I have major anxiety for weeks after I have a bad one thinking it's going happen over and over. I feel your pain! ❤
I've tried so many different meds for migraines, I think I've tried them all. Most don't phase it, otc meds sometimes help (if caught just right). I have tried Advil migraine recently, but found out that it raises my lithium levels so I have to watch how I take them.
Maybe be as still as possible with any extra light off. When mine are bad even if there are people around I try to block noise and anything with light on it. Hope you are better soon.
It's starting to die down a bit, but now the radiator is filling up and clinging and clanging. We have a boiler and my room has the biggest one for the upstairs.
Does it have other option to open up the ethmoid aside from op?
If it's a chronic problem e.g. been there for over 3 months then an op would be the best option. The 2 you can have are Functional Endoscopic Sinus Surgery (FESS) or balloon sinoplasty. FESS is the more invasive op and takes around 2 weeks to recover as it involves cutting and opening up the cavity. Sinoplasty uses a balloon which is put into the cavity and then inflated to open up the cavity before being removed. I had FESS for sphenoid and maxillary. I may well return for an op on ethmoid and frontal.
Tracey, you really do need to see an ENT and get a scan. Have you tried popping your ears, menthol sweets?
I'm gonna start going soon, as well. Tired of noting working...so going to start some "out of the box" treatments now.
Yes when I had less frequent migraines. When the frequency increased I relied on my meds.
Yes, I find it helps but doesn't stop them - however I went for Bowen technique therapy last month and that's made the biggest improvement for me so far..
Yes... I have vertigo w migraines... keep Antivert handy... dr gave me a script... but pharmacist showed me genetic OTC and it works just as well. I keep it w migraine meds... at work; in car; at home and at bedside
Have you changed climates? Or maybe having TMJ issues? Either of those would cause dizziness.
I have an MTFHR gene mutation and take methyl B12 vitamins daily. I think they're helping. I'd take the test (mine was saliva) to see. It couldn't hurt.
I've had daily NDPH since my second daughter was born via c-section and had a spinal fluid leak from the epidural. After the intense epidural headaches disappeared I ended up with daily headaches. After searching for answers for a long time I recently started seeing a holistic dr who found I have the double mutation of MTHFR. My cortisol is also very high, I have insulin resistance and high leptin levels. We are trying to combat these through diet and supplements but still very much in the early stages. Very interesting to see others with MTHFR mutation with NDPH.
I have the mutation of C677T. I only just realized that I was tested back in 2010. The doctor didn't tell me about it but she was testing for blood clotting disorders.
We loved Dr. Rothner there!
He's starting from scratch. My first Neuro started treating me for Occipital Neuralgia a year ago & we never made great progress on any of the nerve meds. My last Neuro is the one who suggested the headache is NDPH w/Secondary ON pain. Dr. Stillman thinks that diagnosis is closer to what I'm dealing with & is having me do new scans (MRI with Contrast & MRA) and is trying pain meds for joint pain instead of Nerve pain. He diagnosed me as Hypermobile & is concerned w/my blood pressure/pulse rate when I'm standing. I'll be sure to keep ya'll posted on any new treatments or Diagnosis!
Omg u will love it. My first round has proved it. It went from migraines everyday to just a few headaches here and thete where a simple ibuprofen wouldn't cure. Remember we use to laugh at those words, headache, ibuprofen and tylenol. I wish you much success.
I was like that at first but I was going through so much pain. Read my post below.
So was I. Read my post below.
Erika, thank you for the concern. I really should have consulted, did this totally the wrong way. I am finally feeling human.
Wanted everyone to have an update about my progress. I was able to get out and do a few errands today without the anxiety. Thank you so much for being my extra shoulder to cry on
I actually have two, but they are both on hiatus right now. One is local (face to face) and the other is online.
Xxxxxxx Yzzzzzz I am the same - I can cope with 50mg and 100 mg but on 75mg I can't sleep. I was only on 30mg and my Neurologist insisted I go up to 100. My Doctors keep messing my prescription up so I have to keep changing my dose depending on how many tablets I have available. My doctor also told me if I was ok on 50 then to stay on that (or even on 30!) but the Neurologist was totally unimpressed and told me so in no uncertain terms!
I'm only on 10mg and I had insomnia and a dry mouth,I could put up with dry mouth, but the sleep deprivation was giving me a headache, and that's the last thing I needed.
None of it worked for me. ☹️
That's rough going. I had similar thing in Dec where I triggered a migraine every day - I'd started a new job too and didn't know what to do with myself. I tried everything, tried nothing etc etc. I've been trying high dose of Asprin with paracetamol & a coffee (with caffeine ) as it's supposed to help widen the blood vessels. This has been helping and I always try it before reaching for Tramadol & anti sickness. I also keep a migraine diary and looking through it and seeing that other months I've only had 2 days of migraine seemed to help keep me sane and know that it does pass eventually !Hope u start to feel better soon. xx
Thanks, will give aspirin and paracetamol a go - will try any thing to make it stop
I had mine pierced 10 months ago. It really did hurt for a couple of seconds and I am not brave. It took a few months to settle and heal. Surely anyone that has experienced migraine would be prepared to go through a little pain when it means that your headaches ease or go away. Mine are 80-90% better it IS worth it. Be brave. X
It's a different kind of pain than migraine, but not any worse! It's a great little piercing x
Thank you for sharing your experience it may give someone who is debating whether or not to do it the courage to go and get it done. It is a life changer. I have had both ears done and know or met other people who have had it done and it has worked for them as well. A lot depends on the piercer knowing what they are doing. I took a picture of a Daith piercing when I had it done and the girl made sure to line it up exactly as it was in the picture. As she put the needle in I felt a sharp pain go through the area where I had the migraines. Has reduced the migraines by about 98%.
My cat seems to know when I need his attention. He purrs and I relax. It helps so much.
Yes when my dog pulls me but any physical exertion does
My 4 kittens actually help out a lot. They know every time I am sick or hurting really bad and come snuggle in my lap and their purr seems to ease everything up within a few mins. They even know when I am going to have a seizure before I know it. My fur babies are my comfort through everything
I have found what helps me most imtre5and peppermint oil
I have tried peppermint oil, inhaling it and putting it on the forehead. They say lavender oil scent helps but it doesn't for me. I know OTC may work of I,could catch them in time and maybe stop it. But they hit like anteuxk
I have found that the Bowen technique therapy has been helping with mine.
I didn't know that there was a pillow by Sleep Number. I love my bed. It's 14 years old and still feels like new. Great investment.
Xxxxxxx Yzzzzzz yes, they make several pillows with air chambers. Mine was memory foam, but I remember they also had down, as well.
Yes, I could and the pillows are brand new, because I can usually tell within a week.;)
Good luck, I hope it manages to shift your current flare up and you get some relief
I need to establish myself with a PT so if I get a flare up as I have now..I can possibly be seen and get an ultrasound or massage to break up the tight muscle spasm
Just woke up and in a few seconds I already feel the muscle that runs from my neck to head is quite painful.... both sides ..left more than right. Already have neck heat wrap on.
Guess not. There are so many to try. Lyrica for example. Gabapentin. You need a good neurologist.
I actually just started on that a week ago. Fingers crossed
I have chronic pain from a car accident that smashed the small bones in my foot, caused permanent knee, back & ankle damage. I feel your pain. Topamax and other similar drugs do the same to me. And Lyrica, I've heard some people it works great for, but I'd sit for more than 5 minutes and pass completely out. Be careful.
Poor thing. I feel so sorry for young people with NDPH as it affects every element of their lives. It's a very lonely condition.
I still think it's important to get up each day and haves 'normal' day.
At least he has family around him . X G
I work in an office and run a sales department. Luckily, my headache seems to be under enough control for me to be functional. At first, I was it very productive, but I have been able to turn a corner - but of course the Botox wears off in a month..
Sorry I can't help....
I am also in need if a good Neurologist... Longmont, Colorado.
If anyone can help.... it would be much appreciated.
Not from Ohio but looked online and it looks like there is a headache clinic at the University of Ohio. Is that near you? I am a patient at a migraine clinic here in Massachusetts and it changed my life. These doctors only see folks with migraines.
I drive 3.5 hours to Cleveland Clinic to see a neurologist (specializing in epilepsy). He had me set up to see a headache specialist but it took too long so I seeked other help closer to home.
Although I need closer to home- Cleveland Clinic in the only place that has helped me for seizures and I would have high hopes for anything else also.
Mine are mostly in neck and back and are pretty frequent. I'm on tizandine which helps a lot.
I have had plenty of those, my arm/leg/other will have shooting pain for a few minutes, and it will go on and off throughout the day once it starts, usually doesn't last more than one though.... and I drop crap ALLLLL the time! My hands will be holding something, and then suddenly decide not to be holding it anymore, without my permission D:
I've got a friend with MS who deals with some of these issues. Not sure yours are exactly like hers, but it might be something to look into.
I eat a lot of chilli
I'm a hot freak myself, and still had the headaches. I'm eating about 2 large hot ones with supper, and then at least one more before I go to bed. It's an overload, and it works for me. I know it won't work for everyone, but you never know until you try. It's very inexpensive and natural.
Will definitely try it
Thank you Charles
Xxxxxxx Yzzzzzz oh I tried Botox. Didn't work 4 me
Sadly modern medicine isn't after the root cause. Just gives things to help with symptoms as the root cause continues to get worse. I was able to heal my migraines using amino acid therapy and by balancing my phase 1 and phase 2 liver detox pathways. Hormones and histamine also play a big role in many peoples migraines. No matter the root cause the only way to heal is to stop focusing on the symptoms and heal the body. This is a great group if you are interested in learning more
Relpax is a NO NO during pregnancy and BF! I have 5 kids and its the only med that remotely helped but not durimg those times unfortunately.
I started Plexus 9mths ago and havent had a migraine since. Wish I had known about it throughout all my pregnancies...its all natural, non GMO and gluten-free
Where do u get Plexus?
I take Propanol for blood pressure also. But my bp is normal. I guess its supposed to help blood vessels shrink but it doesnt help mine. He has me on 60 mg and changed me to 120 and it still dont help. He wants me to get botox but there is lots of bad side effects and im afraid to get it.
I experience the numbness feeling to 1/2 my face & tongue. It happens on either side.
Even one side of my upper lip
Please post when you do. I'm considering it and considering the fl-41 lenses. I think I'll have to choose soon. I went to a neuro opthomologist and she sent me to a neuro rehab. Long story. Back to square one.
Yes ... I turn my light intensity down in Settings ..& at night have a yellow filter that goes on when sun goes down .. otherwise it's a killer .,
Yes light hurts the worst
I've never thought of keeping records of anything but when I have them and how long they last. Thank you for the idea and all the other information too. It's greatly appreciated.
Thank you ladies. It's so nice knowing there's others out there that understand what I'm going through. God bless you all.
Your welcome !!
Absolutely! Referring to the post.
Praying something comes along that works for you! Have you tried a totally gluten free diet?
Thank you for that uplifting message Kerri Lynn! It is so true! This is an amazing group and has helped me through some pretty tough days. But I know I just have to hang in there and take it one day at a time like you said .