So been a long couple weeks finally got results from MRI MRA and being referred... — My Migraine Support Forum

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  • They found 3 areas that they termed aneurysm, the one is larger and of concern, another thing that is congenital they believe, and possible stenosis in another referred to neurosurgeon

  • She told me to try the sumatriptan injection first, the pills don't seem to work, and then in 2 hours use the naratriptan. Kinda nervous with the while injecting myself thing

  • Yea i didn't like how I felt after taking the sumatriptan either :( that whole hangover feeling

Day 3 of this migraine and my OB is considering acupuncture Was jw if anyone... — My Migraine Support Forum

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  • I'm excited he's actually referring me out to get the help I need. I just hope there's good news out there cuz this is my 3rd pregnancy and my last and I'd love to enjoy it at some point lol but thank you! I hope it all works out

  • Acupuncture is great. You will benefit from it the most . When done with you 1 st session stay on tea n salads n you will be migraine free for at least 6 months to a year.

  • I love dry needling. It's done by a PT, they put the needle in the spot that is in pain or spasming. I haven't been able to go lately, due to loss of insurance. I highly recommend it.

Hi guys I have been dealing with migraines for almost a year now and have... — My Migraine Support Forum

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  • When you feel yourself getting annoyed just stop and take a deep breath and think. It usually helps me. I have chronic migraines and i can usually catch myself before doing or saying anything i will regret

  • If you figure it out let me know. I avoid people but I don't work so it's easier for me

  • I'm a mean monster

I have had migraines since I was a child I have contemplated suicide to end... — My Migraine Support Forum

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  • I'm sorry to hear that you're suffering so badly that you are/were thinking about suicide. Sending lots of prayers and strength. Ive tried everything except Botox and the piercing. Over a year ago, I started all natural plant based supplements from Plexus and I haven't had a migraine or cluster headache since I started the supplements. I'm not saying I'm cured by any means, but gut health plays a major role in all diseases.

  • Please tell your doctor how you feel. The correct depression med will not make you want to sleep all day.

  • sending prayers to you

Hi everyone — My Migraine Support Forum

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  • Vanessa I am sorry you are feeling bad. I tried taking amitriptyline and it made me feel bad and gave me the blues. I talked to my doctor and we went to noratriptyline at night. It is in the same family but it has worked for me. I take Naproxen at onset and Imatrex pills for controlled migraines, and the shots for the more severe migraines with nausea and balance issues. I hope you feel better soon. I hope this might help

  • I am on Amitripolin now as well everyday an Feorecet help some but when I get a bad one it does nothing prayers

  • Thank you so much for letting me know and I will be asking him if I can switch to this. I feel bad at times too. Does the noratriptyline make you feel bad?

Also it s been bout 6 yrs since last inpatient wit DHE protocol Dr at ER say... — My Migraine Support Forum

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  • i also have it in a nasal spray call Migranal it DHE spray and i use it as an abortive

  • I'm going to have to ask about that. I had the injections once but that was the biggest process. More than either of the other injections I use (suma and toredol).

  • i use toradol and benadryl injections together they work wonders! The Migranal spray is fabulous but i can only use it 2x in a rolling week. but it works great

At ER with level 10 migain I ve had 2 month Nice Dr but come in and say I... — My Migraine Support Forum

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  • I have had more ER visits then I'd care to count and 2 admissions this year. Fortunately I have had a few ER drs multiple times and they get it. There are still a few that are trained to believe you are drug seeking... they tend to be the younger docs. Thank you to the drs. That listen to us and understand that the pain relieving meds IV can break the migraines faster then anything I've been prescribed at home.

  • Usually I get a cocktail of Dilaudid, Torodal, Benadryl, Haldol, and Reglan and that always works. I actually have everything but the haldol to take at home, but this time its just not working. And must know me and when they see that I'm prescribed the cocktail to take at home, they realize I'm not there for the drugs.

  • I have a similar combo dilaudid, zofran, benedryl. I have it at home too but get better relief IV if I'm in a 10 mode and have the complex stroke like episode.

Day 2 of this monster migraine. Hurting so bad that even my face and hair hurt — My Migraine Support Forum

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  • I feel your pain I don't throw up either I've had a terrible migraine for the past two days could hardly get out of bed to go to work today but I did and prayed I'd make it through the day it really sucks when the you're trying to walk and the floor is just wavy

  • Hope you feel better soon

  • Oh no. Feel better soon

Went to family dr again today I told him about this group all Said many have... — My Migraine Support Forum

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  • I just went to urgent care about 3 days ago for a migraine because it lasted almost a week. He put me on a dose pack of,steroids too. Mine is just for another 2 days though. Is yours everyday,or,just until you see,the neuro

  • It's to take everyday but not sure for how long. I think a week

  • Good for you !!

My dr recently took me off Topamax because it didnt seem to be helping — My Migraine Support Forum

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  • My neurologist put me on Topamax and Depakote as a preventive they both made me so sick and feel really weird I couldn't even walk around I had to lay in bed all the time because they make me so sick so I had to stop taking those I was also put on propranolol it's a blood pressure pill I take 120 mg every night it hasn't caused any weight gain I've taken Cymbalta which I couldn't take it made me sick, sumatriptan. Made me sick and amitriptyline I took it gave me the restless leg syndrome so I couldn't take that either I just have a really hard time taking medicines my stomach don't tolerate anything I do take the propranolol for which is a blood pressure medicine and I take that every night before bed but it still doesn't keep my migraines B I still have them sometimes they last for 10 straight days people don't realize how debilitating migraines really are it's really a disability and nobody believes that but it's the absolute truth

  • Xxxxxxx Yzzzzzz I have lost track of all the different preventatives I've taken. These are the ones I'm taking now plus magnesium.

  • Sherri Piersall Smith, I have a pharmacy in my home!! ;))

Just wondering if anyone has had any success with occipital decompression... — Migraine Chat Room

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  • Yes but they only last 4-5 days

  • I'm sorry they don't provide longer relief. Do you only suffer from Occipital Neurological Headaches or is it just one of your Migraine types? The reason the surgery didn't provide a better success rate for me is because of all my different migraine types and the fact that they all feed off of each other.

  • Not sure. I get migraines from whiplash injury. They usually always start at back of my head.

Counting the hours down for my Spheno Catheter tomorrow — My Migraine Support Forum

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  • Xxxxxxx Yzzzzzz is a little uncomfortable, but they put numbing medicine. The hardest thing is to remember to breathe through my mouth.

  • Wow!! Mine have never lasted that long. I had one a week for 6 weeks and then one every 2 weeks. Now I'm waiting for my new insurance and new doctor to get all their paperwork together to start again. I really thought that it was helping me but your results are fantastic!! Good luck!

  • Thanks

Hello everyone I m due to have Botox treatment for the first time quite soon... — New Daily Persistent Headache

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  • I had my first round in December. I don't know about anyone else but the injections in my neck 24 hrs later were horrible. My neck was so weak. I felt like l needed a neck brace to support myself! I couldn't bend my end to write or clean anything without being in excruciating pain. It took 3-4 weeks for this to pass. All my neuro could say was my body needed to get used to the Botox!! Hopefully next time won't be so bad. I'm due for a second round in March. It didn't get rid of headaches or migraines as yet, just like everyone else here. But feeling hopeful it will work eventually

  • Thankyou all for your extremely helpful, kind comments, they have been much appreciated. I wish you all the best of luck with your treatments, Botox or other x x

  • I had something similar happen my first round! The second time I asked for 1/2 as many injections in my neck and shoulders and it felt SO much better! They can adjust the number and location of the injections according to what works for you, make sure you mention it!

Anyone else get weird food cravings prior to a migraine It isn t before every... — Migraine Freedom

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  • That is a common (but i agree weird) early warning sign - only good thing is if you can take it as a sign to take early action to prevent the Migraine from hitting full force

  • Chili cheese Fritos are definitely NOT part of my normal diet, but absolutely had to have them yesterday, then several hours later had a migraine. Weird!

  • I don't get cravings but often have absolutely no appetite before a migraine hits. That's a big warning sign for me..

So I had my second round on January 27th I have been experiencing eye... — Botox for Migraine support information

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  • Thank you. I am immune compromised and that is one of my concerns about the injections. I have a history of pneumonia. I also have a virus living in my central nervous system that already causes muscle weakness. We are considering the injections in my trap and levator muscles, because after years of trigger point, myofascial and dry needling therapy the conclusion is this is where my migraines are triggered. Anyway, the article would be great! Thanks!

  • My Dr wants me to go to ER. But says this isn't related to the botox????

  • I'm also immune compromised as they think I have MS (get the results on Monday) I had received the flu and pneumonia vaccination prior to starting Botox but when I did they hadn't found the brain lesions that I have. They stopped it after 2 rounds.

So I know a lot of us get our worst migraines around menstruation I know mine... — My Migraine Support Forum

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  • Martina Miller Ödeen that's good. My doctor says if you get Migraine with aura that increases it. If you don't get aura you don't have the risk.

  • I have aura but just 2-3 times in a year! I hope you can find some relief!

  • i hope your relief continues. I'm thankful to have this support group of people who understand.

Well that was nice. Give me meds that don t permanently work. Yes a migraine — My Migraine Support Forum

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  • Xxxxxxx Yzzzzzz I'm just afraid that I'll get the munchies & gain weight. Did you?

  • I was given this also and it didn't help me... I didn't get the munchies until the end of the pack-but it could have been my new meds starting in also.

  • I've done a couple of different ones. Medrol? And prednisone 6 and 10 day packs. I'm on day 5 of a 6 day right now.

Has anyone been on amitriptyline and then gone off of it and had side effects... — New Daily Persistent Headache

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  • I had bad shakes and nausea for weeks after I stopped amitriptyline. Terrible but I just took my usual Tums to try and help. No luck

  • I stopped amitriptyline and started nortriptyline the next day. I'm having fewer side effects since being off the ami.

  • I weaned down from a very high dose over about a month pretty smoothly . But the 2 days after I really got off it: non-stop Super-Headache, sweats, tremors & insomnia. It was hellish!

Has anyone had any problems with a Toradol shot before I feel worse now... — My Migraine Support Forum

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  • Just when it hit my cyatic nerve

  • And shouldn't be injected in a vein

  • Kathy okay if this is your opinion. I've been living with my migraines since the age of 2 yrs old. I'm 42 now.w I've been given a Migraine Cocktail through IV which includes Toradol/Ketorolac, Benadryl, Phenergan. I've also been been hospitalized for D.H.E. infusion. In no way am I saying your Dr is right or wrong. I'm just saying this is what works best for me. Giving Toradol through IV works faster then given IM. And if you Google it, Toradol can be administered through through IV

Hello everyone. I suffer from chronic migraines and chronic cluster headaches — Cluster Headaches Exposed

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  • Yes I avoid alcohol because of my cluster headaches and a fatty liver, which they suspect is from long term use of Excedrin/acetaminophen products for my chronic migraines. And with high blood pressure (another inherited condition on top of migraines) I need my PCP's advice so as not to create more issues, especially kidney problems.

  • Xxxxxxx Yzzzzzz...zolmitriptan IS prescribed for CH. I'm on 480mg Verapamil...15 of melatonin but I can go up to 20. Boswellia has quieted inflammation pain by at least 75% which is huge. I crush suma pills and hydrocodone for quick help...I am NOT telling you to do I have been doing it though. My attacks are lower level because of 7-8 instead of over my abort routine is 3-4 mg shot+crushed pills in OJ+oxygen+capsaicin spray in the nose...kills it every time. On good days I can get away with 2-3 mg shot+oxygen+nasal spray. I hear zolmitriptan works well for is labeled for CH specifically so your doc is incorrect. It happens a lot.

  • Thank you Jennifer Kohr. I will have to try some of your suggestions. I very much appreciate it :)

Young's post to the group: My Migraine Support Group. — My Migraine Support Forum

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  • My Dr won't do that, because I'm on blood thinners and have a clot in the lining of my heart.

  • Had mine done two weeks ago and have not had to take my prescription meds since. I have had a mild headache and tylenol did the job! So glad I did this.

  • I've had mine for almost a year. I mostly get tension headaches but they definitely don't last as long as they used to. Good luck if you try.

Evening all Just a quick note since I m suffering at this moment with a severe... — My Migraine Support Forum

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  • Ive been on it since 2011 and have never heard that

  • Just started on it. Following

  • I'm glad that taken it has not had those effects on some of you. I know as well as most of you do that medicines work differently on people. I was just making people aware of the long term effects of this medication.

I m the pepper guy It s gotten to where I have to eat these peppers before I... — Cluster Headaches Exposed

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  • My family thought I was acting foolish until they saw it worked..I urge more people to try it.hell yes mouth burns bad but so mild compared to the attacks.ill take a hot mouth any day

  • Again thank you

  • I di cold icee to get brain freeze, ice pack and imitrix it takes 45 minutes to null pain from 9 to 5 on Kip scale. I need something to stop the demon in its tracks. I'm out of oxygen. I'm in my 4th week of attacks two in the day and two at night. Thanks for the information

I wanted to mention I saw on AccuWeather website a migraine thing I didn t... — My Migraine Support Forum

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  • I've seen it, but it always says there's no weather that will cause of exacerbate a headache. I'm like "WRONG, check with my head, definitely headache weather going on!!"

  • Lol yes I hear ya! I think I'm going to start putting together pre-migraine plans together. If it's a predictor that'll send me a text or something I think I'll start thinking about that.

  • I get my worst migraines during some kind of bad weather. Haven't figured it out yet.

Has anyone in this group been diagnosed with sleep apnea or suspect you could... — My Migraine Support Forum

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  • Everyone who has responded seems to have sleep apnea. There's got to be a correlation.

  • I have it hate the machine. I dont see how it works i wake up chocking on the moister coming from it and I dont see it help it any...

  • Yes and I use a CPAP machine. I will use sometimes during a really bad migraine also because I get panic attacks and feel like I can't breathe.

I saw my neurologist today I stop topomax right away. Walked away with a plan — My Migraine Support Forum

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  • Going to share two things with you that could change your life. Going gluten free was not a choice for me - a matter of survival as I have Celiac. But it has done away with migraines except weather headaches.

  • Thanks!

  • My new dr suggested Preventa Migraine (available on Amazon) along with an additional 200 mg of Magnesium. I haven't ordered it yet, so no review. I do take 250 mg of AcetaZolamide twice daily which has greatly helped with my weather related migraines. I really haven't had a just weather headache since taking it regularly.

My neuro started me on Atenolol 25mg. Anyone on this — My Migraine Support Forum

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  • I was in my early 20's no side effects for me didnt really do much for me.

  • I take it. Definitely works on heart palpitations (panic attacks) but I can't say it's helped my migraines.

  • Propranolol is a better alternative in the beta blocker family-just in case the Atenolol doesn't work out for you. Good luck!

I can feel the migraine starting of the top right side of my head Trying to... — My Migraine Support Forum

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  • Never fails, I think our body knows when we have a Monet to relax. Off today felt like S--t. Sucks makes you feel so useless noting done today! Prayers your way . And I've been super bitchy . Thank god just to myself!

  • It always happens feel better and get to a dark rokm

  • Better to have it at home. Migraines are Awful at work.

Hello — Migraine Chat Room

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  • What oils do you use and how do you use them?

  • Thank you Robyn. I never realized how many people suffer from this. It is a good group!

  • I use many but the main ones I use for migraines are typically peppermint oil, Copaiba oil, and lavender oil . Sometimes I use frankincense and panaway. I use will try peppermint by itself first I'll put a couple drops in my hand then I'll put some on my temples, the back of my neck and rub into the back of my head. Then I'll put my hand over my face and take some deep breaths. You can put the oil on a cloth and inhale . Most people dilute peppermint oil but I apply mine neat. I'm holding a free online class about using essential oils and how to use them this Sunday .