I have suffered from bad headaches for the past almost 14 years with no relief... — My Migraine Support Forum

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  • It's expensive huh

  • I love it too. I feel so much healthier on it.

  • Yes it's amazing how well I feel.. Never did I think I would. And to have that relief from my headaches is so worth what it cost a month.

I don t know about y all but when I have a level 10 migraine I feel homicidal... — Official Migraine Support Forum

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  • My neurologist prescribes it for me.

  • Shamin Simpkins are u ok? Did it pass? Aren't you on Botox treatments? Are they helping... xo

  • I feel better now. I had my Botox done on 1/23/17. However it is not always strong enough to make the migraine go away. It depends on the stressors and triggers. Botox has helped. Thanks for asking?

Have had this migraine since Wednesday night with minimal intermittent relief — Migraine Chat Room

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  • I know dear I'm sorry you're suffering as well

  • This is my first pregnancy n its really making Me not want to be pregnant ever again.... idk how you handle it for so long. Kudos to you.

  • Dr gave me an injection when I was pregnant long time ago. I'm sure you can be helped. Not nice to go to the ER but maybe necessary.

Have had this migraine since Wednesday night with minimal intermittent relief — My Migraine Support Forum

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  • i can't

    When I did earlier in my pregnancy it didn't work

  • Xxxxxxx Yzzzzzz oh no. I'm so sorry. I had to def fight the battle when i took my meds and didn't.

  • Every medicine is bad for your liver. Not just Tylenol. But we take it anyway

Relpax — My Migraine Support Forum

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  • That's the one that has worked the best for me, but my insurance won't cover it

  • It worked but I was allergic to it. Gluten allergy is a pain.

  • My salvation!

For very mild start of migraine or stress headaches There is a generic... — My Migraine Support Forum

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  • I do the same , and for sinus / barometric headaches I take " behind the counter " sinus pills , that you have to show ID, & sign for . This works about 50% of the time if I can catch it just beginning..

    I realize not all of you out there are in this position, & im praying they find something very soon for us all .

  • The barometric headaches are no fun!!! I thought I was the only one who got them until I joined here. Glad I'm not alone!

  • It worked well for me if I took it as soon as I got the slightest symptoms. However, I ended up with elevated liver enzymes from the acetaminophen. My doctor advised me not to take it anymore.

Is marijuana a trigger for a Cluster Headache — Cluster Headache News

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  • I already pretty much do a high protein low carb diet. no, I don't want the serotonin to get too low, I just don't want to raise it way up there. from what I understand, depression can result from very low serotonin also? B12 raises serotonin and throws my cch off the charts....most everything else, I am fine with. thanks of your observations...they are alway helpful, usually timely!!!

  • Marijuana is one of the only things that helps my pain. A specific edible called 'edipures'. They have them at most dispensaries in CA.

  • Yes it is for me deffo

Hello everyone I m new to the group. I ve been a lifelong migraine sufferer — My Migraine Support Forum

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  • Thank you

  • Hey Collins and Welcome. So sorry you suffer too. My migraines also derive mainly from neck issues. Have run the gammet of meds, botox, nerve block injections in the neck and Mayo Clinic. Still searching and learning :)

  • I'm very sorry, Collin! I hope you are able to find relief!

Does anyone that takes Maxalt just feel horrible after taking it It does help... — My Migraine Support Forum

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  • Sometimes it helps me instantly and sometimes it doesn't..it depends on how bad my migraine is! If I'm havin a hemiplegic migraine it won't help! If the migraine is less severe then it will!

  • That one made me get sick

  • I completely understand... My kids are older and I still feel guilty that migraines rule my life. Praying for you!

do we have a list somewhere of all the avaliable meds for migraines I m... — My Migraine Support Forum

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  • Keri Lynn Gibbons makes a good point...you should know what meds your insurance co will cover. It would be frustrating for your doctor to write you a script only to find out that your insurance won't cover it. Relpax worked awesome for me but when we switched insurance, they refused to cover it. I take immitrex now.

  • Xxxxxxx Yzzzzzz thats happened to me where the dr would give me samples that would work and then i would go to fill it and the insurance would either reject it or it would be a third tier med and my copay would be like 200 bucks !

I get botox for migraines 1st round sucked 2nd round went well 3rd round was... — My Migraine Support Forum

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  • Focus on you right now. That's the best thing for you and your family. Having a chronic health illness can wreak havoc on your mental health...that's for sure. You'll be a better mom and wife if you get yourself better. So glad the Botox is helping you. It did not work for me. Hang in there and fight for you! You're worth it!!!

  • You are a warrior

  • You are a super hero! Don't give up!

When your uncle who means well tells you on your migraine post to take Tylenol... — My Migraine Support Forum

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  • It took years for my husband and mom to truly understand.

  • Mom was understanding even though she rarely had a regular headache, but my now ex-husband and his family never understood my migraines. They blamed my fibromyalgia and migraines on Diet Coke. I had my first migraine when I was just 15 years old. I never drank diet soda then but I was blamed by them for my migraines. It was a sad state of affairs.

  • Dont give up, Deanna. You can get both preventative and pain meds. Some doctors want to help you.

— Cluster Headaches Exposed

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  • Yep!!!! I hate these stupid headaches!!! They hurt so bad and haven't found anything yet that works!!! So tired!!!

  • no Nedd to be rude this is a published poem by arte cluster if u don't like the word then don't comment keepn scrollong we r all sufferes and it's a poem of how I feel we are all.meant to be supporting each other not nit picking coz ur clearly now happy atm

  • That about says it all...

Hi Everyone I m new here And I have a question I have been taking Botox for... — My Migraine Support Forum

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  • No problem...glad to share the info if it can help somebody. I was having really severe migraines if not every day every other day & nothing was working until the Myobloc. I went about 2 months with only 3 migraines!!

  • I get them daily as well. I also have bulging discs in my neck

  • I have don't botox as well and they lasted for a bit but not any more.

Last migraine I had. I lost my husband 4 months ago. I ve had two in that time — My Migraine Support Forum

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  • Sorry for ur loss, i get the head in vice grip/ ice pick feeling when i have a migrain, ive been on propanena for years thats seems to help, but there r thisr days when i throw up thrvwhite flag cuz having migrains r the werst!!!

  • My doctor prescribed that , propranolol , last her as a preventative , and the first 10 days i took it...i had the most and the WORSt migraines i think I've ever had. It was awful!

    But everyone responds different i guess.

  • I'm sorry for your loss! I hope u feel better soon

Finally got myself to the doctors. I have been given these for when one occurs — My Migraine Support Forum

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  • It takes a few administrations to work. If it doesn't work this round def go back. They may need to adjust your dosage and where you get it. It's the best

  • This is the generic for Imitrex and works for me. I take 100mg.

  • Me too!

Hi I m new to the group but not so new in all the weird symptoms I m having... — Head Pressure or Migraine and sinus related along with dizziness

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  • What are those meds uses for ?

  • For me its migraines but they are used for Epilepsy anticonvulsants(Lomotrgine) and a calcium blocker (flunarizine). Google them

  • These drugs relieved the pressure I had in my head, which I didnt know what it was I thought it swelling in my head, or brain, he also said the sinus issue at times goes hand and hand with migraines

— My Migraine Support Forum

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  • Welcome. Sorry for your pain. I have only recently applied for FMLA because I didn't want to believe my migraines could be that bad. They are. Now I'm thinking about disability and it scares the crap out of me. I'm only 45. It is not immediate and I'm still trying new things to help with the migraines. But having them 6-7 times a week makes me start to be more real about my future. Thank you for sharing your experience.

  • Strong perfume or body spray triggers mine. Along with waking up with them on a daily basis.

  • I actually had to move to a different desk while I was working because my co-worker's favorite perfume was a trigger for me. There's a base note used in a lot of perfumes, expensive and cheap, that is a trigger for everyone in our house. I can usually identify it the moment I smell perfumes. I once tried one on that didn't seem to have it, and after I'd had it on for about an hour, I found out I was wrong. It was awful. Despite scrubbing my arm multiple times, a residue remained for most of the day. I've found a few that I can wear that my husband can tolerate as well. I only wear them for special occasions.

created a poll in My Migraine Support Group. — My Migraine Support Forum

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  • Suddenly being awoken, flashing lights are my biggest trigger.

  • Mine is usually stress

  • Once the initial trigger starts the migraine almost everything on the list comes into play. So I just want accurate results, because I know mine would end up sky high. Some of the other things are present before I realize it is a migraine, thanks. Will you post results or for other use?

I don t know how to talk about what is going on right now I have had migraines... — My Migraine Support Forum

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  • What meds were you taking?

  • Dr. Took me off Treximet, Cambia, went from taking 200mg of Lyrica 3X a day to 100 mg 2X a day.

  • How awful. I'm so sorry. I just got off all Ned's except my relpax when I get my migraines - usually 3-5 times a week. I have fibromyalgia and that is definitely not feeling too great. I have been using an infra-red sauna and meditation - massages- seems to be helping some. I'm so afraid of taking all of the medications the dr.s give out. I'll pray for u.

Anyone else really hungry after surviving a migraine — My Migraine Support Forum

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  • No

  • ElizabethBode I use Sombra. It's all natural & doesn't smell near as bad as biofreeze. Biofreeze's. odor makes my migraines worse. I get the Sombra from my chiropractor who's really into all-natural healing.

  • I'll check into that. I live in Mineola. Don't know where I can get some.

So I am just curious to know if there is anyone out there that had no illness... — New Daily Persistent Headache

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  • Just woke up with it one day. No prior illness, no prior history of headaches.

  • Mine came on 10-31-2015 as I was helping my husband get ready for a business trip. By the time we got to the airport my head was hurting so badly. I made it home and didn't know what the heck was going on. I assumed it was a migraine however, I had no prior history. It has remained ever since.

  • I wasn't sick right before I *think*... We tried to look back and figure it out but it had been a year before I finally talked to a doctor that knew their shit, so I was pretty sure but instead of 100% sure I was more 89% or something... I also have fibromyalgia so maybe that makes a difference? I get sick a lot, but wasn't when my headache started, so I guess for me it's a bit debatable whether sickness was related... For the NDPH criteria though I don't think being sick when you got it is required, just common :3

Have anyone tried Botox for migraines — My Migraine Support Forum

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  • I have my initial consultation on Wednesday.

  • Go ahead & get ur records sent to new Dr office or u can pick them up & take them. That way he will have ur information in front of him. Also when u made ur new appt was it for Botox that day or just a consultant??

  • First round. I've been very fortunate. Since Botox I only succumb to full blown migraines occasionally.

Anyone with experience trying glutathione I had brain mapping QEEG done... — New Daily Persistent Headache

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  • Xxxxxxx Yzzzzzz, did you try it to see if it works?

  • You know what, I didn't end up trying it. My neurologist explained in detail why it's bunk and won't help, and he's quite open minded about alternatives. I'm tired of throwing good money after bad, so ...

  • ok, thanks for the update

Has anyone tried the Daith Piercing — My Migraine Support Forum

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  • Had it done and it didn't help

  • It did not help me at all. Did acupuncture help you? This piercing is based on a pressure point. Acupuncture did not help me so I should have know. Aw well, at least I can check it off of the list.

  • I've had both my ears done and I'm thinking about letting them close because it never worked

Botox on Monday Fourth round and hoping it helps even more November was... — My Migraine Support Forum

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  • The company Allergen (name maybe spelled wrg) that makes the product has a program that helps with the copay. Right now they r running a special where everyone is approved. Try looking into it.

  • Yes but it goes away and isn't too bad

  • Yes. It works for most people and usually takes at least two to three treatments to see a difference. Make sure your keeping a migraine diary very detailed and you will notice it's working as you look back at it

I ve read comments where some of you take magnesium along with your migraine... — My Migraine Support Forum

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  • I couldn't ever take magnesium because of the side effects with your stomach but I have heard vitamin b does help

  • Magnesium citrate effect the stomach. I've had those side effects too, but magnesium malate doesn't affect me that way at all. There is at least five different kinds of magnesium. Do not buy from a grocery store. Go to a vitamin store or order online to get good quality. Research

  • Thanks everyone for your suggestions. I appreciate it :)

Where do you feel your headaches — New Daily Persistent Headache

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  • Xxxxxxx Yzzzzzz makes things worse if you have EDS? Oh no!...I've been using ice a ton, and every night to fall asleep like you.(Heat feel good on my neck/shoulders but higher up it increases the headache). (And according to your chart, I am hypermobile, tho on the low end of the HM scale). I think the stretching is not so much that the muscles shouldn't be loose, but that you may overstretch ligaments that hold everything together in the upper neck and the cervical/cranial junction. In fact, I read that's one cause of CCI, can be just years of over stretching weak ligaments. I did Bikram yoga daily for a year once & they always start with a strange & forceful neck stretch that always felt so wrong to me...Anyways... I've really just discovered CCI, but since it explains my 2 abnormal scans perfectly, I definitively want to meet with a neuro-surgeon (and do more research in the mean time). My brain apparently actually sags in gravity, due to the laxity of the whole connective tissue below it, blocking some csf flow, and no amount of neck strengthening or stretching I think will change that. There's prolotherapy, but again, that's rarely done above C2, and certainly can't stop brain sag (and would be really hard for me anyway due a powerful needle phobia!). Here's the link for the cheap inflatable collar I bought. *Tho I think one with a bit less height might have fit me better...the 3 rd layer kinda presses into my cheeks, but still, the lifting the weight off the neck felt like relief for sure. (By the way, that is the most basic test for CCI. They put your head in traction but since most places don't have that I read " the doctor just picks you up by the head (!)". :) https://smile.amazon.com/Inflatable-Alignment-Ever Relief-Adjustable-Guarantee/dp/B01C9TIO34/ref=sr_1 _2_s_it?s=hpc&ie=UTF8&qid=1486000724&sr=1-2

  • Xxxxxxx Yzzzzzz I had the same MRI as you at first since they suspected a brain tumor. IF your problem was CCI, (and that's a big if but definitively possible) your Chiari would only very likely only show in gravity (stand-up or sit-down MRI). That's what's happening with me and my current neuro apparently doesn't know a thing about CCI ) and not much about Chairi either apparently).

  • Xxxxxxx Yzzzzzz That's sounds like a reasonable theory. I'd never believe anyone who claims this kind of pain has NO cause ( and there can be multiples, complicating the scenario)... then there's the snowball effect of spending years in unmitigated pain, which creates all kinds of secondary problems, as that sustained stress is highly unnatural for the body, mind and soul!