Any tips for cleaning the piercing Of course you can t see it lol I ve had my... — Daith piercings to help with Migraines

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  • Wash it in the shower, and other than that, get those plastic bendy cotton buds and sterilise (I use a cheap baby bottle steriliser) and use boiled water and rock salt combo - this was suggested to me by my piercer and has helped healing immensely!

  • Hey! Yeh I just got a travel spray bottle put salt and warm water in! Amazing I'm nearly 4 weeks in and it's healed lovely just didn't feel like I was cleaning it. After a week of spraying salt solution recommended by pharmacy it's amazing. No cotton wool as can wrap around it and cause infection I was told even buds xx

  • I don't use actual coton wool buds, it's little disposable plastic softheaded tools that you can sterilise also. Sort of the like the tip of a baby bottle so very soft :) they are good and handy, very cheap too!

This stuff is amazing just aborted in 5 mins going to stock up — Cluster Headaches Exposed

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  • I sell Rockstar, but both Xdurance & Guava are flavors that we long since discontinued in my market!

    Energy drinks have never helped me at all, but out of curiosity, has anyone had any luck with any other Rockstar flavors?

  • Oxygen,amerge and Dr.Zip (no name DP) gave me a break today.

  • My hubby uses Pepsi, cold downs it as quick as he can when he feels the shadows of the headache coming on, more often than not it works as well.

So far 2017 sucks great big monkey nuts. I ve had a horrible migraine since 11 — Migraine, Cluster, and Chronic Headache Sharing Community

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  • I've had nerve blockers before several times but this last time I got em done they didn't help at all

  • Hugs and prayers you get some relief soon

  • They stopped the nerve blocks for me. Didn't help. :( I'm getting ready for round 3 of botox next month, still holding out hope.... Will give it a could more rounds

Rang in 2017 in bed with a horrendous migraine Now laid up popping... — Migraine Chat Room

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  • Doing the same

  • Me,too.

  • Hope you're feeling better soon. What is it with this time of year? Really plays havoc with my head, I've had a niggling headache the last couple of days, not a full blown migraine though this time. I've decided I don't like bank holidays as they put me out of routine, make me stay up too late and sleep in too long, all the things a migraineur shouldn't do! When will I ever learn, I must at least stick to my regular sleep pattern when it's a bank holiday

After over four years on opioids and 6 months of weaning with my doctor s help... — New Daily Persistent Headache Support

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  • Third day off opioids. Yesterday I was pretty sick. Today is better, but zero energy.

  • I really do not envy what you're going through..... I've gone through it once already. I will add I will NEVER willingly go through it again. I had to get off of all pain meds maybe 4 or so years ago as a sort of reset. My Neurologist insisted I get off of them and then he tried a million various treatments. After 5 months of living hell, He also ran out of options and I've been back on the pain meds again. The pain meds I am on serve 2 distinct purposes.....mostly they are so I can continue on without a morphine pump into my spine. I am on Oxy 2x per day for my back. I have the instant release form for breakthrough pain. I also have the pill form of dilaudid for when my headache begins to get bad. The dilaudid has allowed me to stay home instead of going to the ER at least 4-6 times per year, which is HUGE as I've spent over 400 days as a patient in a shade over a decade. Best of luck man, and keep us informed how you make out.

  • Thanks Kirk!

Happy new year all My father in law who is a doctor was suggesting that I talk... — Cervicogenic Headache Support Forum

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  • In some ways I was still aware of the pain but it was like I just didn't care about it when I took the baclofen. It was a bit harder to really focus, so I mainly took it at night when I wouldn't have to drive.

  • Betsy Neufeld thanks for that

  • Thanks for that Pamela

Does anyone else take verapamil Has it helped in anyway It was given to me... — Migraine Chat Room

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  • I have been on it for 4mths at a dose of 160mg - 3 times a day. I haven't noticed a difference.

  • I take 240 mg at night for about 2 years and I just started taking another 120 mg it helps some it's when you don't take / run out of the medicine the side of effects are really bad !

  • No my side effects are things like tremors, hair loss, exhausted, things like that. It was the same when I took Depakote. Except that seemed to help some this hasn't.

I m struggling so bad right now I wanna go out and get pissed — New Daily Persistent Headache

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  • Thanks Andrew. In the end, compassion is the one thing we can always offer.

  • I can't imagine. I don't think doctors can either. Hope for a cure in the New Year. God bless all of you.

  • Keep believing...the force is strong with you don't give up you've gone this far.. I am going on 3 years with ehlers-danlos syndrome type 3, POTS syndrome and NDPH... so I'm kind of the baby of the group because I only hit in three years but it's been the worst three years of my life.. so seeing everybody sitting with 7 years 10 years 15 years you all give me inspiration to keep pushing

This is the first day this month that I haven t had a migraine or truly bad... — UK Migraine Support And Advice Forum

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  • I sympathise Annabelle, I've had one almost every day of Dec too. I just don't know why. I'm trying everything to keep track but I just can't fathom it out. Brain Scan next week. Good luck to you

  • I know how you you feel, I didn't have a day off last month from a headache or migraine either. Lets hope this year is better. Happy New Year xx

Is anyone currently on or was in the past on the medication Venlafaxine — New Daily Persistent Headache

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  • Oh wow. I'm back to taking only 12.5 mg a day because I was miserable yesterday. I thought the side effects were bad, but trying to go off it is much worse! Thanks for sharing your experience. I hope you've found some help from something else

  • Oh wow. Yeah trying to stop it cold turkey was a bad idea. I learned my lesson too. Hope you're doing better now

  • Thanks, I'm glad I asked for some opinions

How many days does it take each of you to feel the start of the Botox working — Botox for Migraine support information

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  • Ive been having it done for a couple years! Usually it took two weeks on the dot of having botox and I'd be out for a half a day in bed! This time it was 3 to 4 days after having botox done and I felt like I had the flu! I thought it was odd that my symptoms changed

  • This has been the past 4 days... started the day after my initial injections... I'm hoping I get used to it over time

  • I am on my second round and I feel awful my head is constant numb I am in a stupor most of the day. I am 4 weeks out of my second round is this a migraine or Botox?

    I have never had migraines in my whole life until sept. I am 47 please help

My hope for 2017 is to finally find some relief from the constant 24 7 headache... — Migraine Chat Room

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  • Look into tmj. Jaw issues are a huge cause of migraines

  • Find a chiropractor that practices the Gonstead Method. I have been seeing once for about a month now and the 24/7 headache I had is gone. I have had a couple of migraines since starting, but they have been short lived. The results have been encouraging!

  • Have a Prosthorthodontics check your air passages and check jaw for alignment when you bite down. I wear a plate on my bottom teeth 24/7 it aligns my jaw for daily living and has helped tremendously. Surgery correction is to expensive and of course insurance hasn't agreed yet to help pay.

One year in remission Not even shadows I just hope that s a good sign for... — Cluster Headaches Exposed

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  • If it's any comfort. After over 30 years of having an 8 week date with the devil every year or two things have changed.

    The last three cycles were each longer than the previous.

    Back in 1980 till around 2005 they were always 12-14 months between episodes. Then the next couple were 18 months or so.

    It's been 30 months now and last week I had ONE headache with a two day shadow. That was it ! (Hope I didn't jinx it now).

    So rest assured that just like each and every of the thousands of these headaches didn't kill ya.

    Neither do the actual cycles.

    Like someone else said though.

    Be ever vigilant. The little shit beast will check from time to time. Best of being PF in 2017.

    Keep connecting with this group.

    They need your experience.

  • We all are pain warriors...we are strong....

  • Enjoy.

How much success has anyone had with a presidone taper I finished the taper... — Cluster Headaches Exposed

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  • Very limited once the prednisone wore off it was back to the races

  • I haven't tried the taper due to other issues I have but I do know someone who gets great success with the taper. He is episodic and gets two cycles a year and a taper will end his current cycle and then he's good until his next cycle comes around.

  • Well the beast is back this morning, thankful for the break but it definitely wasn't long enough :(

— New Daily Persistent Headache

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  • Wow! I have the MTHFR gene which caused a miscarriage. I didn't know about the deficiencies, but I sure have the symptoms.

  • 23&me is one way to get tested for MTHFR. You can then run your results through genetic genie (as recommended by my doctor). http://geneticgenie.org

  • Xxxxxxx Yzzzzzz I'm not sure how long I've been deficient for but I've had a miscarriage years ago.

The meds I ve taken have worked no headache since Sunday or Monday Prednisone... — Cluster Headaches Exposed

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  • or could be the lights noise and smells

  • theris acardiac rsk with all medicine

  • Physical labor like at my job is a trigger for me too. Verapamil controls them at home but work is a nightmare because its too physical. 2-3 attacks a work shift, getting old after a year and a half :(

Photos from Audrey Jackson's post — Migraine Chat Room

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  • Are you in the US? I did find one website that has both of these that ships to the US. Seems reasonably priced and I would love to try these out.

    http://www.abacohealth.com/

  • This is a Made in Germany product shipped yo a Canadian Distributor. It's right on the bottom of this bottle

    Eurocana Products Ltd

    Barhead Alberta Canada

    There's an email there email them and see where you can find it I'm sure they ship all over

  • I wasn`t sure if. I would have him do it.Then I changed doctors.

I find that applying a magnet to the base of the skull where the ocipital nerve... — New Daily Persistent Headache

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  • Lol. It might be worth playing around with where she locates the magnets. It's not an exact science and might need a few adjustments. Something I did overlook, being male and having very short hair, I probably get a better "contact" between the nerve and magnet. Once I get it right, the relief is instant.

  • Try moving the magnet higher up, maybe an inch or two above the skull base, then adjust it side to side. I should also say again, my headache is only on the one side, so try placing two magnets on one side to start with, as just one might not suffice (ie instead of one at either side, if this does work, then you'll need another 2.)

  • She is leaving for college again today so when she comes home we will try again

Have been diagnosed with my second bout of NDPH Prednisone is the only this... — New Daily Persistent Headache

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  • I'm so sorry about your NDPH, especially as a second round of it. Cushing's is a terrible disease, and getting it diagnosed is even harder. Find a great endocrinologist, and look here for support. Out of any one, we get it. Truly do.

  • I am sorry to hear what you're going through. 30-50mg of Prednisone is a huge dose to be on daily forever, so I second the advice to pursue Endocrinology consultation and would add that, more importantly, please be sure you're getting great neurology/headache care, as I'd want you to be confident that you're exploring everything you can before accepting a life of that much prednisone. Your acceptance of the adverse effects of Prednisone may wane as they accrue over time, and some of them are hard to reverse once they're in full flower. I hope you find both comfort and health in 2017.

Any suggests to help block noise from my daughter s room She is very sensitive... — Parent support forum of children teens suffering with migraines

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  • My son can't tolerate any sound either. I typically go in my bedroom and he is in his bed sleeping (other side of the house). I turn the tv in but with no volume. It is horrible they have to suffer. I hope your daughter gets better soon.

  • My daughter uses a white noise machine most of the time to block family noise but sometimes even that bothers her.

    Soft earplugs sometimes. And lately soft, over the ear, noise cancelling headphones to start out the night. She has problems falling asleep that have only gotten worse over the years so will sometimes listen to soothing meditation sounds or low, low, low calming music

  • We are getting soft eat plugs. She see the specialist at Cooks in Ft.Worth Tuesday.

My headaches have always seem to come either from neck tension I have muscle... — Migraine Chat Room

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  • Ooooooo thanks!

  • stress brings on my neck/muscle tension then its all down migraine hill from there...

  • Exactly like mine. Traction on my neck helped. A bite plate helped. I still take my muscle relaxers but now they work more efficiently.

Is a daith or tragus piercing more successful for combating headaches migraines — Migraine, Cluster, and Chronic Headache Sharing Community

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  • I got the daith one . It immediately caused a two day migraine. After that it gave me zero relief. It didn't bother me really. Just didn't help.

    That said I have had luck with acupuncture

  • I have the daith, both ears...absolutely zero help

  • I have tried all the preventatives with no luck, beta blockers, Topamax, amitripylin (probably not spelled right)....I was having maybe 1 to 2 pain-free days every couple of weeks, if i was lucky. Someone sent me a link of a "migraine cocktail " . It was just natural supplements and like the daith piercings, i figured it was worth a try. After a couple weeks my headaches were getting much less severe and much less frequent. I've gone off off the stuff twice and both times ended up with a massive 2 week cluster. As long as i stay on it, i am getting about 1 migraine every 1-2 weeks and is usually a mild ones that easily responds to my triptans. Even the worse ones are only lasting 2-3 days which is a big improvement over 2-3 weeks! It's just CO Q10, Magnesium, riboflavin, and D3. It has to get built up in ur system before u see results. It took me about 2 weeks after starting it to see the improvement.

Does anyone else get strange feelings throughout their head before during or... — Migraine Chat Room

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  • I get the sharp pains in random spots. Sometimes it is during a migraine and sometimes it is without them

  • These are also symptoms of epilepsy. Especialy the non convulsive kind such as simple partial, crazy how identical the symptoms are. Not sure of that's something you would want to research but I just thought I would put it out there.

  • Thanks