Does anyone have dizzy spells as a warning sign a few hours before you get a... — UK Migraine Support And Advice Forum

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  • Yes, I get dizzy before an attack :(

  • Sucks!

  • I used to get ziggy zaggy lines in one eye, and if i didnt take medication rite away i would suffer badly.

Any one else here think that migraines should be classed as a disability — UK Migraine Support And Advice Forum

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  • I totally agree that it should be, as it is a disabling condition. I once had a manager who was too understanding for her own good. She found me in a dark corner at work, where I was hiding while trying to get rid of the worst of a migraine. She suggested that I should stay at home every time I woke up with such bad pain that I had to take a tablet. Told her that if I did that, I would basically never come to work. She was baffled. I continued as I had done before, as out small workplace depended on staff actually showing up on daily basis. Since 5 years back I'm a stay at home mum and that suits me much better.

  • Yes they should

  • sorry you've suffered for so long and yes I do think it should be classed as a disability, bless ya xx

— Cluster Headaches Exposed

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  • Thank you!

  • Perfect cause it's like as soon as you walk in the door there is so much to say tell ask I'm bound to forget something or everything ! Good luck I hope it goes well for you and get some help/answers.

  • Janelle please don't waste time with general practioners. They may be good for certain things but real cluster headaches need special attention from someone who knows about them. Good luck. It just amazes me how many people suffer with these evil things. My husband is on 30 years

Do any of you guys get confused with your migraines When do you start to worry... — Official Migraine Support Forum

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  • For sure!! If you take Topamax, docs call it Dopamax because you lose so much memory. But even not taking Topamax anymore, I can't think of regular words like and or but when I'm in the middle of an attack. I think confusion and memory loss is just a general side effect of migraines, unfortunately.

  • Yes! Im glad im not the only one! I cant focus, think or talk!

  • I call it migraine brain.

Sometimes and I know this is terrible but I wish my doctors and neurologist... — Migraine Chat Room

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  • Don't laugh but a doctor told me to try the greasest fries I could find and eat them it might break the migraine and it has worked won't make the headache go totaaly away but will break the migraine. Very weird. Things that are odd do work.

  • I recently had someone ask me if alcohol helped my headaches and I did have a vodka tonic the other night while having a headache and it went away... Coincidence? I think I'm going to try it again.... Lord knows I've tried a lot of drugs through the years!!!

One of the worst pains for me is in the morning when I first open my eyes and... — New Daily Persistent Headache

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  • Have you tried to sleep slightly elevated? You produce the most cerebrospinal fluid in the middle of the night while sleeping. I think between 2-4, something like that. If you think that's the type of headache you have. Also, limit your salt consumption. Some people naturally produce too much Csf. There are drugs to take that decrease production, diamox being one-although it's quite a powerful loop diuretic and can be hard on the kidneys. Another pharmeceutical is lasix that's not as potent but gentler in your system. Just a suggestion-intracranial hypertension or pseudo tumor cerebri. Just a thought.

  • Thanks but I've been tested for that!

  • Mine tends to be worse at night especially since there are more pain spikes in the evening due to outside noise and watching tv.

Well my husband s CH are back with a vengeance His biggest help right now of... — Cluster Headaches Exposed

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  • the wife's cat used to try to comfort me when i'd find myself in the throws of the moment

  • God knew what he was doing when He domesticated dogs & cats. I wish I could cure all of you. I know what suffering is like cause I have watched my poor husband fight these evil things for 30 years. Oxygen does wonders but Imitrex injections help like nothing else. Headache gone in a matter of minutes after using that. Had to fight like crazy for the Dr to allow him as many as he needed but thank God he did.

  • It's been about 10 years or so for my husband. It started right before we got married. He finally had 1 full day without one, which was yesterday. If it keeps going like this, it will be 2 days in a row of peace. I am praying this is done for a bit. It got really bad for a while and he started punching the wall & I think he may have dislocated a knuckle. Hard to tell, that hand has been broken before. But I rather he have a broken finger than those CH. Keeping my fingers crossed that he we have a few days of peace. Still so happy the cat is around. She is always there for him when he needs it. Thank god for animals, they are so good for the soul.

I had my first visit to the neurologist today She prescribed me Verapamil... — Cluster Headaches Exposed

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  • I am on verapamil. It works.

  • I think my h usband was put on every drug known to man. Even had a try at a surgical procedure to try & numb the Trigeminal nerve but the way they tried to do it didn't work.

  • That's a Rhizotomy. Typically used for trigeminal neuralgia. Not Clusters

Hi Does anyone go to The Walton Centre in Liverpool I m wondering whether to... — New Daily Persistent Headache

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  • Well I only had 4 needles in my forehead and the rest was head & neck & shoulders.. Haven't had any adverse effects from it. Just feel it's made my frown wrinkles between my eyebrows more noticeable as the forehead muscles don't work so those muscles are sort of over compensating.

  • That's hateful these muscles know how to make life that little bit harder.

  • I've had botox and it didn't help so really need a doctor that thinks out of the box somewhat!

The worst part having a migraine is certain smells makes it worst — Official Migraine Support Forum

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  • That's a trigger for a lot of people. My self included

  • When I'm getting or have an attack, my mouth tastes like a rusty aluminum can and I smell smoke or disgusting cigarettes.

  • I get the same aura of cigarette smell. It's so bizarre since no one in my family smokes and I know that it's not really there, but that's a big sign that I'm going to get hit soon and big time. But I don't always get it.

Hello I am Kathryn. Kiki for short — Official Migraine Support Forum

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  • I can't take triptans either. And sometimes I have an anxiety attack with migraine, which doesn't help any.

  • Bless your heart...The neurontin has helped my anxiety but my Family Dr. has been after me to see a Psychiatrist for anxiety since she doesnt prescribe meds fr that diagnosis and feels i need something for my menipausal am a grouch...i just hate to take yet one more pill.

  • A friend of mine went through depression with migraines after radiation/chemo (she kicked cancer's @$$!) and her dr prescribed a low dose of abilify. She only takes half the dose and hasn't had a migraine in 4 months.

I have the SPoradic Hemiplegic Migraines about 4 5 times a year with the full... — UK Migraine Support And Advice Forum

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  • Me too Melanie Lee

  • This group feels like a warm hug, sometimes you feel quite isolated as no one but a fellow sufferer understands, thanks everyone x

  • Yes thank you all....i have been so depressed since my episodes started a few yrs back and now atleast i know there are other people going through the same nastiness as me.

Do you guys think exercise helps or hinders your condition I gave up... — Migraine Chat Room

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  • Mild exercise helps if for nothing else then combatting depression and feeling sluggish.

  • BUT I highly suggest you don't exercise with a migraine, (beginning, middle, ending, or shortly after). That greatly exacerbates mine after a few hours and is never worth it.

  • they've always told me WORK OUT IT'LL HELP LESSEN MIGRAINES. but for me every single time I've tried I wanted to rip my head off after 5 minutes of working out. whether light cardio or an intense workout. everybody is different.

Just a quick question and a bit of research on my part are all the sufferers on... — Migraine Chat Room

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  • Me too Eddie I think about it all the time which is not good. My neuro said don't let them take over your life - easier said than done. I was even thinking of getting hypnotised to stop me worrying about getting them in between attacks. I get tired of thinking about them.

  • I'm much more laid back but I do occassionally get upset at certain things and can't just let it go too easily.

  • I am a very anxious person. A worry wart! I get migraines almost daily.

I am looking for a good and not extremely expensive head neck tool that can... — Migraine Chat Room

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just curious i have heard alot about DAITH piercing what are everyone s... — Australia New Zealand Cluster Headache Support

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  • I just spoke to my daughter she has a friend who tried it and it didnt work for her

  • I had mine done about a month ago for a different reason... mines still settling in and it hasnt done anything.

  • Oh ok might have to rethink just looking at different options for hubby. Xx

Just been in the DR s for half an hour Although he wouldn t hear anything... — UK Migraine Support And Advice Forum

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  • Oooh it's years since I had the depo, I might ask my dr if it's worth trying again, hope it works for you!!!

  • Had daith in left ear bout 2months ago, was painful, but no migraines, have had a fuzzy head but took paracetamol and it was gone. SO RESULT.

  • Yippee!

Woke up with a migraine at 4am but had to drag myself to work for a 10hour... — UK Migraine Support And Advice Forum

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  • Yeah, muggy weather destroys my head. Hope you feel much better soon. Why only allowed paracetamol?

  • I have put mine down to muggy weather this week

  • If you're still experiencing migraine symptoms then taking an NSAID may help.

Urh having a really nervous day today with a fear of getting a migraine — Migraine Chat Room

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Evening you lovely lot sorry this page has been ignored for a while We have... — Daith piercings to help with Migraines

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  • Like Chantelle said don't be scared it's just a quick scratch xx

  • Hi Chantelle , did you migraine usually occur on one particular side ?

  • I had both ears done. One month out now. Only time I've had migraines was last week from a sinus infection. Otherwise, no headaches or migraines!!

My 21 yr old daughter suffers from migraines they put her in bed in the fetal... — Migraine Chat Room

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  • Ahhhh didn't know there was such a thing!!

  • Imigran nasal spray is the only thing that prevents my migraines becoming full blown but it has to be used as a preventative the first sign you think it might be a migraine. If it's too late the Imigran won't work and the stabbing pain in my right eye begins 2-3 days of pain and vomiting. I only get out of bed to go to toilet or to sit in shower after vomiting severely. I'm 50 and sorry to say my migraines have got worse over past few years.

Wanting to get fit and loose weight but been in constant pain with sickness — UK Migraine Support And Advice Forum

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  • I found some short videos on you tube. Just a quick search. I couldn't do any right now. On day two cos of the heat.

  • I find walking the best for me and also using an air walker which can help tone the arms. This way I can go at my own pace and not be stressed out by it all :-)

  • If I get hot ( red faced) when I exercise I'm OK at the time bur it brings on the worse migraine... Gentle walks ( I'm cool weather) yoga, tai chi and pilates can be helpful

Hi just suffered my first bad migraine that ended up me in hospital They gave... — UK Migraine Support And Advice Forum

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  • Try having some dioralyte, a snack, and some rest.

  • Try some soluble aspirin again - 3 in half a glass of water. Aspirin is the only painkiller my neurologist advises me to take. Hope you are feeling better soon.

  • I tend to sit in the bath with a basin to be sick in and a cool pack for my head and neck. I spend so much time in the bath because I feel the hot water masks some of the pain I actually have a sore on my back! You can speak to your GP about getting the injections on prescription. Because were not meant to take paracetomal and aspirin because they can cause headaches I use something called 4head. Thats good at masking head pain for a while, its like balm you apply to your head. Unfortunately Ive not found anything that actually stops a migraine, only things to try and make it bearable until it passes. I also listen to hypnosis for migraine relief on youtube. That helps me relax my muscles and try to recoup and even fall asleep :)