Not heard of that one sorry. But hope you feel better soon xx
Was on high doses for a while - no real side affects but didn't help
20mg at night. No side effects. Not sure if they work or not as I daren't chance it. Propanolol too. Daren't come off anything but still get them. Three nights in a row last week.
I tried it and it made me incredibly washed out and tired all the time, propanolol had the same effect
Yes Faye I have mine before bed. And I've had already done my bit for the world as well I have 2 kids so no need to worry about how it will effect contraception! I haven't heard about the birth defects lol a new one pops up daily! Yesterday was hair loss, today birth defects...I wonder what tommorows negative side effect will bring!!
That's what my box looks like
I'm waiting for the weight loss. ... hurry up I took it 2 hours ago and I'm still fat!!
I have only wished and prayed that I could pass out instead of enduring the pain, but at worst in my worst attacks I vomited slightly from the pain, but that is extremely rare, and only happened once. Most of the time I'm thinking if only there were a way to knock myself out, but I know it's not the answer. Luckily I've since found other ways to fight it.
Same with me, Manuel. Some of my worst attacks included nausea and vomiting.
Passing out is not a common symptom of CH. Unless you're on a medication like verapamil which lowers bp. I would get that checked out with your doctor.
Hi Shannon my son has had NDPH for 3 years. He has been very up and down with pain as we have tried to sort this condition out. He is doing really well at the moment on 3/10 pain and back to school full time and enjoying life. Don't give up hope. We are in Sydney Australia.
I'm also part of a lovely group of moms and dads of kids with headache and migraines if anyone would like some great support they are an amazing bunch of people.
Hi Kris, can you tell me what you found helped please? And which support group you are on? xx
It's the same as a tens unit.
Just got a script for it today from my headache specialist. Going to see if it's covered at all by my insurance.
My daughter gave it a try. No help for her. It was expensive and not covered by our insurance. We were able to send it back and get a partial refund. Still worth trying. I think it helps some people.
at least my back pain has backed down below a 6...at times lower..just had a pic line inserted today...odds are I am in for awhile If anyone is interested, I am the WIlkes-Barre General, rm 438 bed 2 window. 570552-4382
So sorry to here that kirk those suck. I put you in my prayers. I never thought I would wake one day in August 8 years ago with NDPH and it will never go away
Unfortunately I have the same issue but it mostly has to do with strenuous activity. I can do regular things without pain, like walk and day to day things but if I try to jog, do sit ups or lift weights it triggers them. I figured it was only me and because some botched brain surgeries where they clipped an artery. I'll never be sure what it is but I'll never let them win!
I also can't do sit ups, or run, or do fantastic hair dances like I see on TV ;). Anything that raises my pressure suddenly or jostles my brain is out. I haven't had an MRI yet, though. I'm sorry to hear about your surgeries, but I have to say your attitude is awesome! :) I can do my arc trainer workouts no problem, elliptical also, anything smooth.
Any exercise triggers migraine other than walking - I used to do loads now restricted to none at all
Sure. I began taking Plexus products about a year ago. Totally not my thing. Can't stand multi level marketing of any kind. But I read a ton about healing the gut and decided to jump in and try. I started by taking pretty high doses of the probiotic and magnesium supplements as well as their "slim" drink in order to cut down on the amount of sugar I eat.
I no longer take the slim and have been able to significantly cut down my doses of the other two products.
My results were incredibly fast. Within a month of starting I had my first 10 minute headache free period.
It seemed completely crazy for me to even give it a shot but honestly I felt like I was running out of options. Like so many people I had tried everything anyone had recommended. And that's why I posted this. Just to encourage people to keep trying those things that sound ridiculous. Who knows! Maybe one of those crazy concoctions could be the exact thing your body needs to begin healing itself.
Feeling so thankful tonight for this community of people who understand what this is like...
It is so amazing
Thank you so much for sharing.
I have cervical spondylosis in C4-C6, so I frequently get the CS migraines, as well as the unrelated ones. I cannot stand anyone going any where near my neck as in the past I've come away feeling worse and in more pain. I just keep my neck warm all the time by wearing scarves and not sitting in drafts and not straining the neck too much. If the neck hurts and I haven't actually got the migraine I just use the high strength ibuprofen and it keeps it under control.
I've just started having acupuncture... so far so good! it's helping!
Yes - very painful - Botox plus extra botox
Sara I'm sorry to hear yours have gotten so bad!! And Andrea, love that! Thank you!
Yep. Letdown headache, after arriving at a vacation and finally able to relax I then signs a day trying not to go it in bed :( Has only happened 3 times I think.
Yep, I usually get weekend migraines, but haven't found any way to stop it, unless I remain stressed throughout the weekend aswell :)
There are hundreds of us that use welding gas O2,no prescription,no insurance no hassle,I got mine at Tractor supply,it will kick the crap out of a cluster in just a few minutes,I very recently got a little tank that I can take with me,I had a lot of hits driving as I work out of town,killed my first one off with it last week driving it was such a wonderful feeling,being in control,not in fear
Thats awesome information Jeff, Thanks
This is a really good relevant link http://morrobayphotos.com/ch/4step/
Get another opinion! My shadows are so intense and can last days,weeks and months on a couple of occasions...
mine too dont know what this over in a few minutes is but how do I get that?
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMHT00247 70/ everything you might want to know from symptoms to diagnosis to research and treatment
Thank you so much girls! Xxx
Xxxxxxx Yzzzzzz when I feel one coming on, when I remember to do it, they work great for preventing a mild or pre-migraine from escalating for me. I know people do take the drinks daily & find it helps them a lot, though. I have not tried it for a full blown migraine, but it can't hurt, you know?
Yeah I agree! It's definitely worth trying. I take a magnesium supplement every day so id have to figure out how much to add to it when I get one but I know my dad takes the calm every day for anxiety and he says it's great and also helps his digestion
I have read that part of the aura symptom with my type of migraine and I presume others is the feeling of dental pain as in its heightened, this goes along with other senses, one for me in particular is smell, things can become so intense to the point of repulsion but once the migraine is out that dissappears. I hope you get some resolve with your dentist x
Ménière's disease Is a close link with migraine too Faye. It's a slow progression that impairs balance and is usually linked with tinnitus and vertigo x
Really? That's very interesting thanks x
If you've not done well I wouldn't worry about it. They are not going to stop it yet and as for emailing her they never pick up their mails anyway, well not at my hospital. I've been a bit naughty as I've been taking the odd painkillers for my neck and am too worried to tell him in case he stops it lol. God it's like being back at bloody school!!
why did Toni leave the group?
You best ask Toni. It's not for me to say
I was on Tomapax for 10 years. It took about a week to kick in. The side effects were manageable and when weighing them against 3 day, puking migraines, staying on the med won out. It worked for about 10 years. it is gradually no longer working as well. Good Luck. I hope it helps for you.
Hi Jo. How you getting on? I'm feeling pretty good apart from a twitchy eye for a bit after I take it. Definitely noticed a dip in appetite too xx
I have been on Topamax for several years. I have stopped it 3 times and tried other medications. None of which worked. Each time I have gone back to Topamax. 100mg twice a day. This works better than any other preventive out there for me. But we are all different
Thanks girls. Will have a chat with him tomorrow. He will be sick of seeing me soon!
Faye Barlow hi Faye I reread my post and saw that I hadn't been very helpful. So, after many years of trying different things, including pizotifen, then betablockers as prevention (didn't work) I finally settled on a thing called Migril (ergotamine) and cocodamols to treat the migraine as it occurred and to take every few hours or so as it continued. I was pretty mashed after a 4 day bout! I then worked my way through the triptans and there area few! So now I take 30 amitryptoline every evening, which really does curtail the frequency and severity of the attacks. If one does happen I take a frovatriptan and 2 cocodamols , go to bed if I can and a couple of hours later I'm pretty much ok. Amitryptoline in much higher doses is used to treat epilepsy and depression, but studies have shown that it can be useful for migraines in lower doses. So you may wish to ask your doc what he thinks about that. Hope this has been more helpful :) x
Thank you Aileen C. Hill that's really helpful. We are walking full of drugs!! I'll let you know what he decides on x
Good luck. Let us know how you get on xx
Thank you, will do xx
It went well :) I feel quite achey, a bit dizzy and generally a bit squiffy but I'm ok. I think it's probably more as a result of the anxiousness before as opposed to the actual injections. I was in there less than 10 minutes and they didn't hurt that much - painful but not bad at all xx
I have an accupunture prescription if you are interested,I cant say it will help though,cluster headaches are a neurological disorder in all likelihood caused by a malformaton in the hypothalmus,pineal gland,both or some other structural abnormality altogether. Traditional Chinese Medicine the acupoints selected were: Ex HN-5 Taiyang,
GB 14 Yangbai (both only on the affected side),
GB 20 Fengchi (on both sides), LI 4 Hegu, LR 2 Xingjiang, SP 6 Sanyinjiao, ST 36 Zusanli (all on both sides)
Oxygen people - not hearing much. For me an attack can be gone within 10mins
ask ouch what to do,something needs to be done fast ask if you can see the specialist ch nero in London to
I bought some tablets a few years ago in Florida for migraines as I had run out of mine. These had caffeine in them xx
sadly i cant have caffeine it gives me terrible panic attacks and sets my IBS off but so pleased it works for you all xx
Yes. In fact not having my coffee can cause a migraine but having other brands of coffee can cause them too.
No it's just referred pain from your nerves that are sending pain signals. When it happens to me it helps to gently massage my head all over
Xxxxxxx Yzzzzzz wow this is interesting. I get this hair pain in the same spot a lot of the time but I don't tie my hair near it. Never thought it could be this x
Yes, I get the hair hurting bit. It's like I've had a tight ponytail in for hours, but I haven't. With a sore scalp, the best hairstyle for my very long hair is two braids worn draped across the front of my body - this holds the weight of my hair & protects it from being pulled.
Ironically after anaphylaxis from taking triptans....
Admitted to hospital many times.
I've had a few times where people have wanted to take me. Another time i bothered because I was blacking out for a few seconds every hour or so (ended up with a fair few bruises, inc on my head where I would just drop and smack my head on tables etc during lectures. Just got told it was exam stress. Never have been stressed by exams.
So i don't hold out much faith anything helpful would happen. Oh and I always have to explain what triptans / sumatriptan are, even in A&E where I'm most likely to get it incidentally administered (sometimes given in case of severe head trauma.)
Thankfully much more manageable now.
My migraines are the same as Linzi's for the most part, but I see oras when I drive and get different migraines where I see a 3d affect when I blink. Try getting a cow magnent from the hardware store and carry it with you, it may help for a while.
a 'cow magnet'? What the hell?
It's a magnet of course but it connects the electrons in your body with the magnent and helps with migraines, it's something I tried earlier on and it helped me , either hold it close to your heart when you get a migraine and carry it in your bag or purse