Holy moley. I posted about having cervical facet injections yesterday morning — Cervicogenic Headache Support Forum

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  • I'm so sorry, I just saw this, thanks for checking in.

    Today is Day 5. I'm cautiously better. My neck can move almost as much as a normal person, and neck pain is considerably lower. Head pain is about the same level it usually is but weirdly keeps moving around. I like to think it's battling the steroids in a war of some kind. ;) I've been getting stabbed by an invisible sword that goes clear through my head and into my shoulder on just one side a few times an hour, but each attack is very brief, ~10 seconds. They're kind of like ice pick headaches except the "blade" is larger and the stab goes much deeper.

    I still can't lift anything remotely heavy or look down more than a minute or so w/o a pain flare that lasts several hours, but I expect that will get better, too.

    Thankfully most of the steroid side effects seem to have cleared up. Unless I just jinxed myself, of course.

  • I'm glad you are feeling better! Hang in there!

  • Thank you, Harriet! I'm trying! Taking it so easy I'm bored. ;)

I am trying to look for a dr that has experience on NDPH Can anyone recommend... — New Daily Persistent Headache

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  • Dr Michael Ament (amentheadachecenter.org or .com I forget) is an incredible headache doc in Denver. Krista Grams

  • Thank you! I am hoping to keep my doctors for at least a few more years, but eventually when I have to switch I will keep that in mind :)

  • Sarah hi! Can you please let me know how it went with dr Rozen? I finally got that appointment but I am not sure if anything will help

So for the past few weeks I have been in a bad place with the pain Work is... — New Daily Persistent Headache

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  • Whats a gp? I am in a very bad situation too, But I am trying and trying

  • Thanks guys sadly I have exhausted all of the above meds. Botox made me end up in hospital and other Iv drugs fail to do anything. I'm allergic to opiates to so it makes it very hard to try and take the pain down. A gp Gigi Canahuati is our local doctor in the uk who we go to with minor ailments etc x

  • General practitioner.

I ve started topiramate today the last prophylactic that my neuro can think of... — New Daily Persistent Headache

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  • I took topamax the first 2 weeks of my sophomore year, I barely remember any of it, and the pieces I do were not pleasant... I had botox once but not only was it painful and made my face ache (and I couldn't move my eyebrows, which I hated) but I had a weird, rare allergic reaction that was a rash on my arms and legs, but even though it never got to a severe point my doctors didn't think we should risk it again...

  • I'm not noticing any huge improvement as yet, but I'm going to persevere. Also, when does the weight-loss kick in??? I've been waiting for that :)

  • Has anyone tried citalopram? Any results? Or side effects?

overgrowth cause daily headaches — New Daily Persistent Headache

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  • We found she has intolerances to wheat, gluten, eggs, milk!!! She's also a vegetarian! We're struggling! She is doing a bit better, tho...I think it's just the power of taking/having some control...over something! No more meds, just working on her diet, exercise, and taking supplements. Thanks, Maggie Leigh!

  • A candida "expert" will likely tell you they do, even that they are a main cause of some migraines and other pains. The reality? I think its probably diverging a bit from this.

  • What could be a big problem is if you used a lot of abx and killed lots of good bacteria, or if you had a bad imbalance of bacteria from the beginning, that's a problem, I think some of those bacteria are supposed to travel by the lymph system and spread all over the body, they help break down garbage so your liver can process it better. I think they could even get to your nose, and if they are mainly bad bacteria, you might have some problems, they might contribute to a dysregulated immune system. So, if this would be the case, you would have to get a fecal transplant, not easy to get but they are doing them now and it cures some people.

I know this is stupid but scheduled for outpatient DHE this coming Monday... — New Daily Persistent Headache

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  • Chris, I'm in the hospital right now. I just did 5 days of DHE. I know things are different as an out patient, but they gave me zofran through the IV beforehand. Then they offered reglan afterwards. I don't like that med, so I requested phenergan and they agreed to that. That did the trick, but I don't take it that often. Best of luck to you!

  • If you had a bad experience and don't want to do it again that's always our choice as the patient... I have had multiple procedures that I only ever did once because they were unpleasant and didn't help, and even though they might help after 2-4 times, I decided for myself that I didn't want to go through that for a less than 50% chance of success... As I have seen others say here, it's our body and we have the right to tell our doctors what we are or aren't comfortable doing, and ultimately have the final say in what medicines we take or what procedures we try :) best of luck though!

  • Thanks Krista, this was my choice. I haven't done DHE since 2008 and had great success.but the doctor abandoned my case when the headaches recurred. So I'm try it again only this time it's outpatient.

5 days out of 8 that my son has had migraines with vomiting You would think... — Parent support forum of children teens suffering with migraines

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  • Thoughts are with you and your son. It never gets any easier. My son has had one since Sunday and I completely understand.

  • Your poor boy and you. Hang in there. I really hope it improves for you. Sorry things are so tough at the moment. Yes more positive thoughts your way.

  • I hate this for you!!!! Prayers your way for healing for your son and peace for you! IT SUCKS, but don't give up!!!

My progress is not good lately not much is new so instead of posting something... — New Daily Persistent Headache

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  • I considered bacterial infection so I bought this nasal spray with bactroban, gentamicin, and EDTA. I could not use it much because it is extremely irritating, specially to the eyes, and I have very sensitive eyes since I got some viral infection recently. Since I felt it didn't help at all, I got no mucus flowing, then now am not convinced at all. So now, what I will try to do is get methyl b12 injections, found a doc willing to administer it but I have not found the methyl kind, only the cyano kind and I don't like that one. Will be making calls tomorrow to find out who in the world sells them for a good price.

  • My daughter started a suppliment a few weeks ago for pyrroles which made her symptoms of Pandas a lot worse. The naturopath said that will happen if she has strep or it could be copper dumping.. Its Molyzinc. so we are now going a lot slower, Just be aware that might also happen if you have bacterial things going on. My son got a lot of mucus with the coloided silver nasal spray so im guessing its doing its jobfor the staph and other bacterial thing up his nose. . I will get him tested for strep as well. The osteo yesterday said his sinuses are very inflamed. My head is telling me there is a conection here with the strep and ndph.

  • Xxxxxxx Yzzzzzz Well, then try some spray abx, thou I wouldn't recommend bactroban, go with gentamicin and edta only first, to see what the reaction is, you don't want more irritation fueling the inflammation. I tried it, too irritating, and since I already and still have a viral thing going with some kind of flu or something, then it really adds to the irritation. So I might try it without the bactroban later on.

Second follow up with surgeon — Cervicogenic Headache Support Forum

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  • Good luck!

  • I wasn't aware they could be done upright, that's really cool! Super good luck to you. And I hope it gives you some answers so you can move forward with treatment. I have movement-based vertigo, too, but it's not too bad most days and I've learned to work around it.

  • Wishing you the best outcome.

How many of you with neck hypermobility are really sensitive to touch pressure... — New Daily Persistent Headache Support

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  • That is so great!! They did it 3 times?

  • Three different procedures. The sphenopalatine ganglion blocks was on the third try.

  • Gotcha. Amazing! Keep us updated as time goes on. Are they planning on doing them regularly or is there a surgery type more permanent solution next?

Has anyone had an nerve block done and did it help my nuerologist has referred... — New Daily Persistent Headache

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  • Oh dear. Hope that doesnt happen to me.

  • No help. My son had 2 done & he felt absolutely no relief. He hated the way he felt coming off the meds they give u. He said he would never ever do it again.

  • Ten minutes each time

My little boy has been getting migraines since around 1yr old now 3 along... — Parent support forum of children teens suffering with migraines

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  • Yes we have had success with an Osteo for my sons migraines too

  • what is that?

  • also ask your doctor about magnesium...but please make sure you ask before giving since your child is so young.

I am new to this forum I was wondering if anyone has done the iv migraine... — New Daily Persistent Headache

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  • Yes both days

  • Then I would expect to be loopy, possibly even the third day. Everyone reacts differently, however, and you may be just fine =).

  • Ya me too. Thanks you guys , you have all been really helpful. It's nice to have some place to go to ask questions.

My daughter 8 was getting migraines about 4 5 times a year in kindergarten... — Parent support forum of children teens suffering with migraines

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  • I would still go to get their input...especially since you had to wait 2 months for the appointment. What does the chiropractor do for her? Do they make adjustments to her neck and back?

  • Yes, he makes adjustments to her neck, he said that she carries a lot of tension in her shoulders and neck....so he did manipulations to her neck, shoulders and the muscles along her spine. We have her roll her shoulders a few times a day and stretches....it is helping her a lot. Migraines run in our family, so I think it is best to still bring her to the neurologist....thank you for the advice ladies. :)

  • A friend of mine (who has a friend who's daughter gets migraines) suggested the Chiropractor because it helped her for a few years.....after a few years of chiro it stopped working as well and now she has started having reiki and craniosacral therapy that is helping her.

http. www. ncbi. nlm. nih. gov pmc articles PMC3464463 — New Daily Persistent Headache

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  • I finally have an appointment in the morning with a 2nd neurologist so I'm prepping all my materials to ask him about. This one has some different info than what I've read before.

    Have you tried any of these?

  • I have, and nothing has worked. The thing with the study is that patients had "good" results if they had NDPH for less than 6 months, so typically speaking, that isn't "NDPH" but there are medicines there to try, just be careful with the side effects.

  • Yes I've had many of them as well, indomethacin, Botox, topamax, elavil, relpax, dhe injections, magnesium etc.

    I'm at 3.5 years in now, but willing to try more at this point.

Women who had have NDPH while pregnant what did you do for the really bad... — New Daily Persistent Headache

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  • I stopped all my preventive treatments before 12 weeks and now take codeine when it's really bad, but I'm now 31 weeks and suffering really bad with spd/ pelvic girdle pain, so much so that I will be delivering baby at 37 weeks

  • Slept and ate loads. Nothing you can really take, not that it works for me anyway. I took anti sickness and paracetamol. X

  • Sometimes it does dull the pain which is better than nothing for now

Okay I need a pep talk I ve been going thru this for 8 years I am in a major... — New Daily Persistent Headache

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  • I have tried that balm and others. I'm gonna get more of those again. I like peppermint oil by young living. It helps numb the pain. Basically I go for as much numbing as I can get. Thank u!

  • Thank u all! Your support is helping me! I go thru ups and downs like the rest of you. Trying to get myself out of this slump!!

  • Thank you everyone! The depression right now is worse than the pain. I have to find a way to get this under control! And just deal with life as it is. So oppressive!

Can anyone please give me advice as professionals don t seem to have answers... — UK Migraine Support And Advice Forum

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  • Aw I'm glad they did hun never be afraid to tell people you get them like I said I bet loads of your customers do too, I used to worry about mine all the time and now I'm like so what I get them I can't stop them although I've tried, also try downloading an app called migraine buddy it's really good and it might show what's contributing to yours, you have to fill the info in of course but it's fantastic xx

  • This is the app I use xx

  • Tanks Kelly Tedder I really appreciate it xx

Because I don t get them often GP won t help with anything so was wondering if... — UK Migraine Support And Advice Forum

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  • If its just the pain you want to get rid of as soon as the aura starts and you know its going to lead to migraine you can buy imigran from the chemist its expensive £8 for 2 tabs but that is,all you will need xxxx

  • could your GP prescribe you some triptans just in case

  • Thanks...I wasn't aware I could buy it over the counter so I will get some in just in case. GP won't prescribe nothing as at the moment it is less than 1 attack per month.

So the docs just put me on verapamil 240 mil I am also on Topiramate and... — Cluster Headaches Exposed

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  • They want me to start on one. Then take other ones if they fail

  • I'm afraid as there is no one pill. They are juggling meds until you reach a balance. I've been chronic 10 years. And this is the first year I've felt like they don't control my life. Still have majors and minors but not every day. Not every week. I don't expect them anymore

  • Key question.

    Poor practice

Well I havent been here for quite the while I still have NDPH Im on my late... — New Daily Persistent Headache

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  • In a way i kinna let go,, i just said to myself fuck it, it wont get and it cant get any worse, like a nag eventually it will get tired or you just give in, either way it helps in this case

  • My son stopped all meds & any treatments. He is not worse, but the meds made it worse bc they had their own side effects but did not help the HA. I told him I completely support that decision & he just tries to manage day by day. He cannot attend school & does online classes. That at least allows him to feel like spending time as a kid every now & then.

  • I'm in the same boat. Quit all meds and just manage triggers that make it worse. Trying to accept it is just a part of me-like my chronically tight hamstrings. :) once in a while I still get down. But then I just try to manage that too :)

Having mixed emotions today I went to Mayo Clinic in Rochester Minnesota for a... — New Daily Persistent Headache

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  • Hey Sarah Disambiguation do you have any info on those docs? I need to try some injections but I don't see any point in things that won't make a difference

  • I do not have TMJ according to my dentist and PCP. However, I have not had an MRI of my jaw.

  • Sarah, I just sent you a message. Might be in your "other" folder.

Does anyone have a similar situation to my son Ryans Ryan is 16 He gets his... — Parent support forum of children teens suffering with migraines

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  • Xxxxxxx Yzzzzzz understood. Yes, you have to be disciplined and I didn't realize you had to be sitting there the whole time, I thought it was more of a work as you go type thing. Glad you found something that worked for him!!

  • I am happy he is doing better. Please keep us updated.

  • I just joined this group and this was refreshing to read. My son will be 11 next week and we have this same problem. 90% of his school work is on a computer also.

Having trouble getting a health care plan written up for my 14yr old daughter — Parent support forum of children teens suffering with migraines

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  • Thanks Julie Piskin. After an 18mth wait we only got ser the Neuro because she ended up in hospital. Our next appoint is Jan next year. I'm in Australia and I have been fighting for support from her school since she started in 2014. She has dropped from an A/B student to a C/D in one term (12wks)

  • My son has a 504 - in it it sates that - He may leave the classroom without waiting for permission due to nausea, vomiting, or head pain. Evan will not have to provide a Doctors excuse to cover absences. Doctors note on file. There will be no penalty for absences or tardy's due to migraine symptoms. Evan will be allowed to have a water bottle with him throughout the day to stay hydrated. Evan will be allowed to have light snacks throughout the day to prevent low blood sugar. (Both are precursors to migraines) Evan will have a hat and or sunglasses at school and be prepared to wear them to protect him from the sun and or fluorescent lights. Evan can utilize earphones to help quiet his environment and aid him in calming/coping with noise. Also included is extra time to complete assignments if he is absent and also test extensions. I hope that this helps

  • Thanks so much. My dr's room nurse is contacting the sub school manager to find out what exactly they need.

Has your child ever woken up in the middle of the night and gotten sick — Parent support forum of children teens suffering with migraines

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  • It is a tough road for sure. My sons migraines started when he was five and have only gotten worse despite the preventatives and emergency medications. He will be ten this month and I am heartbroken that he still suffers on average 2-3 times per week. Praying that they find the right combo for your son and mine soon. I am overwhelmed and exhausted I can't imagine how our poor children feel :(

  • Oh dear that's tough ! Such a hard road and as a mum we feel guilty about any decision we make for them. We just have to go with our gut feeling and hope it's the right one for our boys . Did your son go under a general for his MRIs ?

  • My son is 10 and will sometimes wake up and vomit if he went to bed with a migraine. Best thing we have found so far is lavender and peppermint oil and an ibuprofen. If we catch it soon enough we can avoid the vomitting

Looking into other options. just wanted to share some of what I found — Parent support forum of children teens suffering with migraines

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  • Dr.Elser is who we use

  • We live in OK and went to Dr. Elser, thankfully the new preventative meds are working!! Symptoms are not gone but much more manageable.

  • We see the migraine specialist at Univ of Maryland Medical Center in Baltimore, MD. He gave my daughter her life back!!!

I hate sending my baby will be 3 in a few days to bed with a body full of... — Parent support forum of children teens suffering with migraines

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  • hormonal migraines are the worst! maybe she has those? Birth control helped when I was on them....

  • She turned 3 just a couple weeks ago, so probably not.

  • Xxxxxxx YzzzzzzDuncan lol I must have missed that somewhere...I was reading so many posts....sorry about the confusion! But keep that in mind for 10 years or so down the road.

Hi everyone I am new to cluster headackes I have been getting them for about... — Cluster Headaches Exposed

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  • My son gets injections every 3 months! Bout 15 injections all over head and neck!!

  • I have not heard of botox being effective for clusters

  • Google Dr Ahmed Botox. Migraines study. When we suffer from cluster headaches we suffer with chronic migraines which is what we all call shadows the Botox stops the chronic headaches