Might be a silly question but I m really sincere in asking it is your memory...

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  • Yes I can say that memory issues are there for me...mostly short term memory. When the cluster headaches happen I find myself forgetting what I was going to do or find when I leave the room. I also find myself stopping in the middle of a conversation because I lost my train of thought.

  • Thank goodness I am not the only one .

  • what was the question?

  • Umm....I forgot.

  • Xxxxxxx Yzzzzzz lol

  • Yes

  • I thought for sure that was the case. But after all the testing n whatnot. Realized it was the lack of sleep/anxiety/depression.

    Someone described it at PTSD above. Never thought of it that way. But that's right. Makes perfect sense. What could be more defining than having someone driving a red hot Rusty and bent spike into your temple. 5 times a day for six weeks.

    Makes perfect sense.

    Oh and by the way..... Once sleep does get regular again without the fear of sleeping. The memory greatly improved.

  • I can't imagine being chronic. How many cycles each day?

  • Hell, I've lost whole weekends.

    Oh wait, that was the 80's and had nothing to do with headaches. LMAO!

  • Yes! I had MRI because of that. I was sure that I have Alzheimer, but nothing. I am 44 years old.

  • If you remember the 80's then you weren't doing it right! Lol

  • Lol. Yep!

  • Oh yes!

  • Kristiina Niemelä I had all the dementia testing. MRI and all that too. In the end it was so to sleep deprivation derived from anxiety/stress. Once I started getting a bit better sleep. Memory returned. I'm between clusters now for several years. But the old habits of being afraid to sleep for fear of having a CH wake me after I could work an abortive really hosed me.

    Working behavioral modifications to get to sleep better.

    The beast stays with us all. Even when he's not poking a hot poker in my eye. Prick ! It is indeed similar to PTSD.